19 February 2009
My Vitiligo
Hi... I am Wissam, man, married with 3 kids, Just recently I noticed few white patches on my face and neck, at the beginning I thought it is only Fungus or some skin infections. But after visiting my doctor... he said...You have vitiligo..
Vitiligo??, what was that?.. My doctor said... you know the famous singer Mickel Jakcson, You have similar skin disorder, but you still in the beginning...
Now after 6 months... I have started treatment.. during that time, I went through many internet material for study, and the most that make me happy, the fact that.... I am not alone....
Welcome to my Blog..
Subscribe to:
Post Comments (Atom)
I have started Protopic Ointment 0.1%, twice a day, after 1 month, now, I have good results on my hand, but not my face & neck..
ReplyDeletebased on the literature, You need at least 3 months to see results but I can see results now on my hand.., my white patch on my upper hand start to repigment slowly.. However I started to take the war to the next level, I have ordered my UVB narrowband.. lets wait and see.. I will keep you updated..
You need to use the lamp one time every day day in every area. The exposure should start from 1/2 minute. Every day you need to increase the exposure time by 1/2 minute until you reach the time that makes your skin a bit pink, and stay at that time. The correct time is 1-5 minutes, depending on on your skin.
ReplyDeleteIn Vitiligo After few weeks you will see small brown dots. Few weeks later they will increase their diameter until they will fill the whole spot. The cure is faster on the face and neck than on other areas.
I have two small vitiligo spots on the testicules, due to a medication that was too strong on my skin, and it kind of burnt me. I've been putting Dovonex for 6 months now, with the only result that the spots were only more red. Now, I'm starting to have brown spots. I have them more and more, and they are browner than the rest of the testicules. I don't know if this is the healing part or if I'm gonna be stuck with white spots AND frikles...
ReplyDeleteI am now noticing spots on my testicles as well. I think another patch is forming. You posted this a while back, did you have any luck with this? Did the vitiligo spot move to other parts.
DeleteAre you sure, It is Vitiligo? if it is.. then I highly recommend you to use a combination of Protopic Ointment & UVB narrow band, If is converted into Brown colour , It is a healing process, that convert the skin to darker, due sudden activity of the pigmentation cell, It will be stabilize and return back to normal, any way you need to consult specialist, as Vitiligo always mistakenly diagnosed. Get well soon friend.
ReplyDeleteToday is my 2nd treatment with my new Dermfix 900 ( handu UVB narrowband light), I started with 20sec treatment exposure and today I increased another 20 seconds (40 seconds).
ReplyDeleteThe frequency of the treatment if 3-4 times per week. I still dont feel any difference. I will keep you updated..
Today is very important for me.. my white patch on face start to re-pigment again..I think it is the PROTOPIC who saves the day.. I am still warming up in my uvb narrow band treatment, I reached 1 minute & 20 sec.. I am targeting 3 minutes.. The treatment time (exposure time) should be increased slightly 20 sec each subsequent treatment. I advise all vitiligo patient to use this magic.. called Protopic.
ReplyDeletein this case you see results using the protopic and the narrowband lamp togueter?
Deletei am using protopic but I want a nbuvb wand. I am in the states and I need a prescription. It sucks....
ReplyDeletehope your still seeing good results....
Yes, the results are fantastic, the patch near my lips almost gone, I am using the nbUVB light, it is very important to use it in the treatment, PROTOPIC will stop the self immune but you need UVB to produce the color back.
ReplyDeleteYou could buy handy light made in germany from me i have extra new one, I will send to your door step without prescription (I will pack it like gift). This is not to make profit only as help, The price is USD550 with delivery.
Hello. Just want to ask a question regarding the application of Protopic. After I put it on, there's a shiny film that remains on top of the skin, no matter how hard i rub it in. Is this how it's supposed to be? After I apply it, the vitiliginous areas are shiny and it makes me look weird. For how long should the ointment rest on the skin before wash it off? Also, it rubs off on everything? Am I supposed to not use my hands while the ointment is on them? Thanks for your help!
ReplyDeleteI did not noticed any shiny film in my case, yes, the application should be two times a day, and just leave it there for few hours, and after that you can wash it with water, I have recovered 99% from vitiligo, I think the most important factor in my case is the UVB lamp narrow band, it is the most effective treatment method at the moment, if it is combined with the protopics, it will cure any vitiligo., Please keep us updated on your case
ReplyDeleteHi Wassim,
ReplyDeleteI am impressed with the short yime it took to recover with Protopic.
I am currently using Vitix the process is very slow and some areas on my face are recurring.
I have consulted another dermatologist, he told me to use Diavobet for 6 weeks and reconsult.
I live in lebanon and Protopic seems to be a new oitment, not many are aware of it
how big were your spots on the face ? do you recommend me to used Protopic
where can I find the UVB lamp in Lebanon any clue ?
thank you for your help
best regards
Fadi
Hello Fadi,
DeleteI live in Lebanon, too. You can get UVB treatment at AUH.
I started using protopic ointment about 2 weeks ago and have started to see small brown patches on 3/8 spots.
ReplyDeleteShould i get the UVB lamp or try my luck wid the ointment?
Yes, this is the exact rite time to use UVB, I am sure you will be recovered totally, Please follow the exact procedure and dont burn your skin. 1st start with 20 sec, then increase by 20 sec till you reach 2 min & 20 sec (based on my skin), You should treat your skin by the light 3-4 times a week, Please make sure to remove protopic totally from your skin, let your skin rest for 2 hours and then start your treatment, make sure your skin is dry and not moist during treatment.
ReplyDeleteGood luck to you friend.
Hi, I also have vitiligo and am looking to purchase a UVB lamp. Do I need it to be 100% UVB light? What brand is a good buy? Thanks for this blog.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteThank for your post, You can Google this brand:
ReplyDeletehttp://www.psoriasiscafe.org/dermalight.htm
If you are in USA or UK, then buy from Amazon
and yes it has to be 100% UVB narrow band, otherwise it will burn your skin.
Please make sure that you start the treatment time 20 sec, then increase the period by 20 sec in the second treatment, till you reach 4 min then please notice your skin after treatment, if it start to change to pink colour , then fix the UVB treatment time at that level which only change the skin after treatment to pink colour.
This is the time that suitable for your skin. The frequency of treatment if 3-4 times per week.
I highly advise to use PROTOPIC ointment together, please refer to my blog for details.
GET WELL SOON..
hii i am 16 year old male and i wass diagnosed with vitiligo when i was in 8th gradee ive had it all my lifee but i just thought it was birth marks but the dermatolagist said it was vitiligo and i never really paid attention to it but it is now spreading over the years i have it on my fingers, legs, genitals waist, my feet and my arm pits. i am very self contious about it and i have been a little depressed about it and i am in desperate need of a cure i have tried elidel oitment(dnt think i spelled that right but) and i am frequently using fluocinodine and ive been using it for about2 weeks and i am wondering
ReplyDeletedoes protopic really work?
and does it cause cancer?
aand is the uv wand necessary because ive heard that may cause cancer also... plzz get back to me i am in desperate need to find a curee or at leaast bring back my pigmentation
ps does it matter if it is in a big patch or does protopic bring back the pigmentation too?
Thanks , for your comment, Please never get so depressed, psychological effect will play big role in spreading Vitiligo, make it more aggressive in spreading.
ReplyDeleteI am not Doctor or specialist in this field, I am here just to tell my successful story.
I have done many literature review on using PROTOPIC and UVB Light Narrow band, Please do not worry at all, because the good think is Vitiligo patient will never even get any Skin cancer, Vitiligo and Skin Cancer will never sit on one skin, This is what I would like to make it clear here, I have asked many specialist in this field.
Regarding UVB narrow band, I repeat not U\VB alone, but UVB narrow band, is the only safe and fast cure to Vitiligo. And the more efficient way is to start the treatment by taking 3 month course of PROTOPIC OINTMENT, just apply two times a day morning and before sleeping, after one month, of PROTOPIC alone, start combined PROTOPIC with UVB narrow band , and please refer to my blog for frequency and exposure time, This is what I can guarantee that it will work for every Vitiligo patient, because it worked for me and many.. many others I advised.
It dosenot matter if the Vitiligo patch big , medium or small, it will give effect, but for complete cure for large area, it might take time, but do you, when you feel that some progress happens, you feel psychologically much better, and this how you can win the war, never give up.
I always advise you during the treatment to take daily any multi vitamins , multi minerals supplement , B complex and Cupper work very good with PROTOPIC and UVB narrow band.
Please write to us your progress.
Get well soon friend.
http://www.nlm.nih.gov/medlineplus/druginfo/meds/a602020.html in this web site says yes,cause cancer......but this cream recommended me a woman....she has marks on her lips....she says the cream will remove the marks,but in her case,the marks return because she was depressed.....she said that in three weeks starts see results in here case...I just want to be well informed about this cream! I suffer vitiligo 7 months ago....and I want to remove it quickly.....then you say that the cream does not cause cancer?.....how long you are cured?...if you can share more this is my email:buzcaviticura@gmail.com
DeleteThanks for sharing Wissam,
ReplyDeleteWhere you diagnosed 6 months before you took any active treatments? Do you have any before and after pictures?
Thanks for posting again, sorry Friend but I dont share my photos, The Vitiligo spots cleared totally in my case.
ReplyDeletehi, first and foremost, i just wanted thank you for such an informative blog. I have learned so much from reading it. I just have a few quick question for you. i just started my home treatment with my Dermalight80 and was wondering... after each treatment, how long did it take your skin to turn pink? Does it turn right away moments after or did it take some time within the 24 hours after the treatment to change color? I am currently at about 2 minutes (sixth session) and my skin is starting to react to the uvb light, but it is a light pink, should i keep increasing 20 seconds with each session until my pink gets darker? My last question is am i suppose to apply anything after i am done with each session? Like moisturizing lotion or anything because i havn't been applying anything since my skin doesn't seem to be drying out.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteDear Friend, Thanks for your post,
ReplyDeleteYou have made the rite choice by starting UVB narrow band, Dermalight80 is a good UVB narrow band source, which use Philips widely used UVB narrow band light, let me answer you:
1-After few hours up to 12 hours from the treatment, the pink colour will appear, not immediately.
2-Once the light pink colour appeared on your skin within 12 hours from the treatment, Stop on that time, this is the exact time you need for curing., if you increase the time, your skin might have burned and this will give adverse effect, even the Vitiligo area will extend, as the burning is the worst thing in Vitiligo people like us.
3-Do not put any Ointment on the skin during or after the treatment, just leave it dry, this is very important; you still can take bath or wash the area but dry it after that.
4-I always recommend PROTOPIC treatment at least 2 month before stating the UVB narrow band treatment, but if you have started the UVB course, then continue.
5-UVB treatment is 3 -4 times per week, do not use more frequency.
6-During the treatment make sure your skin is very dry, if your skin is wet, the film water or oil layer on the skin might affect the intensity, frequency of the UVB narrow band and thus reverse effect will happen. Do not get scared from this but make your skis as dry as possible.
Get well soon
Hi again,
ReplyDeleteThank you for the quick response. You've been great help. Just had a couple more really quick questions for you (thank you in advance by the way).
I've been applying the UVB to my vitiligo spots every other day for the past 2 weeks, so Mon, Weds, Fri, Sun, Tues and so on; which is 3-4 times per week as you have indicated. My question is if i apply the UVB light on a Monday and by Tuesday it turns pink. Even though Wednesday would be my next scheduled day to use the UVB light again, am i supposed to use it again if my skin is still pink from Monday's session? Or do i wait another day or two until my skin turns back to white before i proceed with using the light again? The reason i ask is because i want to make sure that i am applying the right amount of UVB light dosage without going overboard and burning my skin.
My last question is how do i know if i have burned my skin? i know there is a fine line between my skin reacting by turning pink and actually burning. I am assuming that i have burned my skin with the Dermalight80 if it feels like a sunburn, which the skin hurts and feels itchy?
Again, thank you so much for answering my questions.
I am sorry for late reply, Yes please wait till the pinky skin returned to normal color and then apply uvB light again, and yes you are rite the burning will feel itchy skin, so please avoid that.
ReplyDeleteWissam, thanks for the blog. Its very informative and useful. I have just ordered the DermFix 900 off the Androv website.
ReplyDeleteI have white patches on the back of my hands and also on my arms. I had resolved to live with the condition but after some nice sunny days this summer the patches became really visibile and I noticed a lot of people looking at them. I even started getting some "Michael Jackson" comments which made me even more sub conscious. I also have patches on my legs and genitals but I'm not too bothered about those.
I'm really hoping for good results as the treatment from all I have read seems to be quite successful for a lot of people. I will post back when I get the lamp and start treatment.
Everyone, please read about protopic and use of UVB - it will increase the risk of skin cancer and should not be used together.
ReplyDeleteWissam,
ReplyDeleteThanks for the great blog!
Did the vitiligo on your face turn your facial hair white? I've been told that if my facial hair is turned white, the UVB treatment may not work very well.
Hi all,
ReplyDeletei read all comments and am considerably convinced to use it for my 3 1/2 yrs old daughter.My only concern is that we live in new delhi india,How can i get the combination of prtopic and NB UVB lamp
Sourabh
The only way is to buy them, protopic is available in local pharamacies and UVb comp can be purchased online from many websites and they send to your home address. You can try to search in ebay as there are some cheapest prices.
ReplyDeleteWish all the best
Hi Wissam
ReplyDeleteI want to ask about direct sitting under the sun and exposuring vitiligo spots to sun light, does this help treatment of vitiligo? By the way , I am using protopic since 1 month when I discovered that I havr vitiligo.
please advice.
Thank you
Ive just started using protopic about 10 days ago and have a uvb light in the mail. I'll wait until about a month in to use but i have already noticed two small brown marks appear and its more than exciting to see this product working. I had to see a dermatoligist in a big city to get this prescription but glad i made the trip!
ReplyDeleteGreat site, people need to use protopic. I hope the uvb light helps speed up the process. I have 4 spots on each foot, and genitals. and two finger tips.
Hi there. I was just wondering if hair that have gone white becouse of vitiligo can get the normal color back after using uvb treatment?
ReplyDeleteBest wishes!
Have had enough with Vitiligo? Don't Give up your hope too soon. Our medically proven Vitiligo Treatment will make you live your life all over again. It's easy, It's safe and It's quick... Have the best Vitiligo Cure at: curevitiligooil.com
ReplyDeleteHi Wissam, I am wondering how you have progressed using Protopic AND the UVB light. My son has vitiligo on his neck and has been using protopic for about 3 months now with a little pigment improvement. we are looking into combining treatment with a uvb light to see if results are better.
ReplyDeleteI am having thick hair in this area so, I think this could be helpful, Could you tell me , when the vitiligo starts? how big the spot?
ReplyDeleteMy son is 12 years old. He has about 3 small patches of vitiligo. Similar to the size of a quarter (coin). They came into existence about 1-2 years ago. They were very small and seemed to more noticeable. We went to a dermatolgist and he confirmed it to be vitiligo and gave him protopic .1% 100g, which after researching I was skeptical of applying due to his age. (Although he is above average height/weight). Finally, we decided to try the protopic and have been applying for about 3 months and there seems to be some improvement, but it is hard to tell because it is now winter here and the skin around the patches was very tan before due to summertime. So, I'm not sure if it just looks like the white patches are blending in more now that his skin is lighter because of winter. I just purchased a dermalight 80 uvb handheld light that we were going to try, but also have some hesitation due to all the warnings which say NOT to use Protopic with any kind of light therapy. My son does not seem to have vitiligo anywhere else except maybe a start of a small patch on his cheek ... but it doesn't seem to be spreading out of control. I am wondering how I should start the uvb light treatment and if i should take a break from the protopic? any advice/suggestions would be helpful.
ReplyDeleteHi Wissam,
ReplyDeleteI just got my uvb light for my son. i have read that i should start treatment in 30second intervals on alternating days. should he still continue applying Protopic? would we apply protopic every day or on the alternating days? protopic, uvb treatment, protopic, uvb treatment and so on?
I am anxious to see if the uvb treatment will improve the vitiligo patches on his neck. i am also concerned about using both treatments together and possible skin cancer risk.
You can stop the Protopic treatment and start only the UVB therapy, start with 30 sec, then increase 10 sec every treatment until you reach the duration in which you notice a little pinky skin after the treatment, then you should stop at this level, for example my level was 2 min and 10 seconds (I am white man from middle east), each skin will have its time but usually it will be around 2 min.
ReplyDeleteOk and here is my special recommendation to you.. During the treatment, start multi vitamins and multi minerals course (get a good daily tablet formula) you can find many brands in the market, and make sure the formula contains folic acid, B12 and Cu, I am sure you will start get pigmentation very soon. Please let us know the results, and have all my best wishes.
Hi Wissam,
ReplyDeleteI have read your blog extensively and wonder how close the narrowband uvb light wand should be to the skin. i will be applying this to my son's neck and want to make sure I am not harming his skin. Also, when should he continue using the Protopic, or should he stop altogether once we start light therapy? thank you for your kind responses.!
Please use the instruction with the comb, normally you can apply it straight touching the skin, the most important is the exposure time. Yes, I would advise to stop the protopic treatment, and take muti vitamins and minerals course with UVB treatment, include B12, Folic acid and cu.
ReplyDeleteThanks
Hi Wissam, I'm new to this blog. I started applying protopic oilment on my 8 yr old daughter about a week ago and just yesterday underwent her 3rd UVB-NB exposure (1 min so far). I just wanted to confirm with you if the following application sequence is okay: take a bath before bedtime, do UVB-NB, apply protopic. Also, do you still encourage using protopic along with NVB-NB? The last few posts make me doubt now. Thanks!
ReplyDeleteHEY WISSAM, I HAVE HAD VITILIGO ON MY EYELID AND EYEBROW SINCE I WAS EIGHT AND I AM AS WELL USING THIS PROTOPIC AND IT DOES SEEM TO BE WORKING ON MY SKIN BUT I WAS WONDERING IF IT WILL ALSO MAKE MY WHITE EYEBROW HAIR BROWN .. THANK YOU FOR ALL THE ADVICE !
ReplyDeleteIt looks like Wissam is not checking this site anymore. Anyway, I just wanted to let everyone know that the UVB-NB treatment that I started on my daughter a month ago is working. I'm not sure whether the protopic is doing something, but I think it's mainly the lamp. Her face has repigmented 50% I would say, but I don't see any noticeable difference on her hands, feet, elbows, and knees. I've realized it takes longer exposures on those areas for the skin to turn pink. It seems to me that radiation from handheld UVB-NB units are insufficient for hands, feet, etc. My two cents!
ReplyDeleteTo respond to the agove about your daughter, I have had vitiligo for 13 years now and have aggressively tried many things and read more than you want to know about it. To break it down, it seems that not everything works for everyone, but the narrowband UVB light seems to be the best treatment with the widest success. I think the Protopic can help but I really think the light does it. Of all the topicals out there, it seems that Protopic is the best one for Vitiligo. I hope this helps somone. Yes it looks like Wissam is not checking this blog but I notice he still has Google ads up here that pawn other treatments and he gets paid for those ads. I am sure he donates it all the the vitiligo charity though!
ReplyDeleteThank you for posting on my blog, I am always here checking your post and get it approved, I would reply when there is a need for new information, ,most of the questions have been answered somewhere in my blog, very soon I will add more topics to this blog. Yes I strongly feel that UVB narrow band is the best solution for Vitiligo at the moments, even protopic is helping but without UVB, you will not get the regimentation, by the way, please give your skin rest for one or two months every 6 months of UVB treatment. I have my skin regimented completely but after I stopped the UVB for 3 months, I can see some white dots came back, and now I am in action again to remove them by UVB.
ReplyDeleteGusy please indicate your names and your country at the end of your post.
All the best for you..
Hi, thanks a lot for the informative blog...i've got vitiligo on my face around the edges of my mouth and eyes and have just started using Protopic. I was just wondering though, i'm thinking of buying a nb uvb lamp, but i'm wondering how you use it to treat small patches as it seems quite large,and i dont really want it to tan the normal parts of my face as the contrast will be worse?? Are there attachments that come with it for smaller areas? thanks
ReplyDeleteIt is possible, You can use a piece of clothes to cover all your face and make a hole with diameter slightly larger than the vitiligo area, and cover your face during the treatment, don’t worry about contrast, subjecting your skin to 2 minutes every 2 days to UVB will never make your skin get tanned.
ReplyDeletePlease let me know how long since the vitiligo started to appear on your skin?
It appeared about 6 months ago but has spread quite fast. I'm not sure if the protopic is making any difference because i've heard its supposed to burn or itch a bit for the first few days but i've had none of that. I have an appointment with a dermatologist but thats not till july!, so i bought some protopic on ebay. its protopic, not a generic make, and its 0.1%
ReplyDeleteWissan, any update on your condition? Hope you fully recover.
ReplyDeleteYes, I have recovered, but some spots near my lips are coming back and I keep fighting back with UVB and multi-vitamins & multi-minerals.
ReplyDeletehi wassim where can i find the UVB light?
ReplyDeleteWissan,
ReplyDeleteis there certain foods that you have to stay away from?
No, all food are ok.
ReplyDeleteI had Vitiligo about 2 months ago. I see my dermatalogist regulary, taken vitamins, stay away from meat, fish, spicy food and i have seen slow progress of recovering. i am thinking about purchasing VUB narow. any thought?
ReplyDeleteI am not sure if Vitiligo has any connection with spicy food, meat and fish? do you have any reference for this?
ReplyDeleteYes please go ahead with UVB treatment it is the best available treatment nowadays.
Hi Wissam,
ReplyDeleteThank you for a very quick response.
here is the link where i find out about vitiligo diet.
http://wiki.answers.com/Q/What_is_the_diet_for_
vitiligo
Vitiligo & Diet
Diet plays an important role in the treatment of Vitiligo. Cold and phlegm producing foods are harmful in this disease. Not only the response of the treatment is delayed but also the lesions can spread if such foods are used frequently. Food items which are restricted, and those recommended, are those given below:
TO BE USED:
Cereal: Whole grain food, millet/barley porridge, oats, rice, pasta (processed grains not
recommended)
Breads: only whole grain breads, bran wheat chapatti,
Fruits: Blue berries (people have different opinions), rasp berries, pears, cherries, banana,
pineapple, apple, mangos, apricots, grapes, papaya, amaranth
Vegetables: potatoes, Beet, Carrots, tomatoes, Cucumbers, Courgettes, Tykva, Cauliflowers, spinach, broccoli, brussel sprouts, cabbage (vegetables of different colors), garlic, celery root, peas, beans, portabellas, crimini and button mushrooms, onions, French beans, chillies, red pepper, fenugreek, drumsticks, turnips, green and red raddish, parsley, plumes, bitter gourd, ridge gourd, caraway, anisi
soy products, lentils or pulses especially bengal gram or chick peas
Drink: Tea without sugar in the morning, 6-7 glasses of water every day, juices, honey, green tea with mint (people are confused about it)
Nuts (vitamin E and special fats): Figs (excellent), Apricots, brain, walnuts, almonds (very good), pistachiounut, black dates
Oil: Olive/vegetable, pure ghee obtained from butter (the best),mustard oil,
Other things: beans and pumpkin seeds, only boiled meat, jaggery
***USE a lot of ginger and turmeric in the food
***Early morning sunlight to get light ultra violet rays
***Better if the diet is salt free
Breakfast:
Prridge, Berries, Dried fruits (figs the best)
Lunch/dinner
-1medium sized vegetable or fruit
-½ cup (125 ml) juice
- ½ cup (125 ml) raw, cooked, fresh, frozen or canned, vegetables or fruits
- 1 cup (250 ml) raw, leafy vegetables
- ¼ cup dried fruit
Vitamin supplements: With the diet above mentioned
Scientists now know that many people with vitiligo are deficient in folic acid, vitamin B12, vitamin C, pantothenic acid , copper, and zinc. Vitamin B-12 and Folic acid be taken together.
i) Recouleur vitamins (one vitamin per day with food), Recouleur® is a synergistic combination of vitamins and minerals that may help fill in the color in gray hair and depigmented skin. Vegetarian, Price: $89.95, Bottles contain 180 tablets. That is a six month supply if you take one per day.
For optimum results:
Take one tablet daily with a meal. Or, as directed by a physician
You must have some of your original skin or hair color.
Exposure to sun or artificial sunlamp can accelerate skin effects.
A well balanced diet is the best foundation for starting supplementation.
ii) calcium plus vitamin D tablet every day.
DO NOT USE:
Fats, spices, salty,
SOUR FOOD: acidic/citric (lemon, lime oranges and mandarins, grapefruits, amla )m Vitamin C prohibits production of melanin.
Beef, Red meat and chicken, egg
horseradish, brinjal, mustard, pepper, melons of all kinds, gooseberry, tomatoes if possible, sour strawberries.
White bread, flour, fried and smoked foods, bilberry, quince, chocolate, , strong tea,
butter and margarine, alcohol, coffee, NO milk or milk products, buttermilk, ice cream, flavored drinks, alcohol.
tamarind, cashew nuts,
Fish and sea food
Pickles
References:
http://www.dermabest.com/vitiligo_diet.htm
http://www.wholisticresearch.com/info/artshow.php3?artid=270
http://vitilem.bravehost.com/
http://www.leucoderma.com/app/diet.asp
http://www.recouleur.com/
http://www.antivitiligo.com/vitiligo-treatment/vitiligo-diet.html
itiligo & Diet
Thank you very much, It is really interesting information.
ReplyDeleteI am a sixteen year old girl and I've had vitilgo for about 6 years now. I just found out it was vitiligo..I was misdiagnosed and told it was tinea versicolor. I was perscribed Protopic and have been using it for about 1 week. There is already some color coming back into some of the spots on my neck. I have vitiligo on my eyelid, under my arms, back, and stomach. I am just concentrating on my under arms, eyelid, and neck now. If protopic helps these areas I will try it on the other areas. So far when I put protopic on it itches, but not all the time. Is this normal? My dermatologist has recommended me to use protopic for 2 months and if I don't get the results I want I can use a light box, which I am assuming is the same as the UVB light mentioned several times above? I'm happy to hear so many success stories with the use of protopic ointment and am excited to see my spots disappear. I used to be very self concious about my condition but I have very good friends who helped me realize it's nothing to get depressed about. This site has been very helpful and my mom and I are looking in to buying a UVB light. Thanks so much! I will let you know about how my treatment is going!
ReplyDeleteThank you for the post, I highly recommend you to use UVB light as soon as possible, and use it with B12, folic acid and cupper supplement. I am pretty sure you will get faster and immediate re-pigmentation. Please remember that after re-pigmentation do not stop the treatment, you need to continue but with less frequency.
ReplyDeletePlease keep us informed about your treatment progress.
My Best wishes
Wissam, I posted my comment early but i guess you deleted. I was saying I hope you not working for UVB because your blog gave me hope.
ReplyDeleteHi Wissam,
ReplyDeleteThank you for your informative blog. I had vitiligo on my facial area, eye lid and eye brown like to know what your suggestion and recommandtion are. too much informaton on the interent tht make me confused. my doctor told me i had segmental vitiligo.
Please start using UVB narrow band, with vitamins like B12, folic acid , please refer to other posting in this blog for dosage and duration, keep us updated.
ReplyDeleteHello Wissam,
ReplyDeleteI used protopic on my face to cure vitiligo i see dark spot on the vitiligo area for a while and then it goes away back to white spot agin. you know why this happeing? I just oredered uvb is on the way how you treat the eyes lid area?
Yes this is due to lack of UVB light, you need UVB to gain back your skin pigmentation. Regarding the eye lid, I don't have personal experience, hopefully one of the blog reader can help you, but when it comes to UVB , please protect your eyes during the treatment.
ReplyDeleteWisssam,
ReplyDeleteThank you for the site. I got my UVB today. just want to get it right I will start with 20 second and increase another 20 second the following day or do i have to skip a day before start treat with uvb again.
Thank you.
Wissam,
ReplyDeleteI like to ask you question about Protopic for now i put it on my face and leave it on for all day until bed time then i take shower washed my face and put it on again. my question is do i leve it on my face all day or just for couple of hours then wash it off?
How do you do the combined protopic and nb-uvb treatment? i read in some sites that protopic should not be used with uvb treatment. i have had vitiligo for 5 months now, and luckily it is just confined in a small area on my back. This is the first time that i will be treating it, and i am confused as to how i should go about it.
ReplyDeleteYes, You have to skip one day, the treatment frequency is 3 times a week.
ReplyDeleteFor protopic treatment, yes you can put it on your skin as long as possible, twice a day, however, always allow 2-3 hours rest for your skin every day.
ReplyDeleteCombines Protopic and UVB as not recommended at all, howevere if you want to do both treatment in the same day, please make sure you washout the oil and dry your skin before each UVB treatment.
ReplyDeletemay i ask how long since your vitiligo started that you began treatment? Where you first got it and also how fast did it spread?
ReplyDeleteWissam, so you said we should not combine the use of protopic and usb? man i just refilled my protopic for 85$.
ReplyDeleteWissam, I friend refered me to a chinese Doctor i talked on the phone with her one time. she seems to be very knowledgeable about vitiligo she advised me to stop seeing western Doctor period. I have not gone to see her yet below is the email she sent to my friend.
ReplyDeletepassing Dr. Duan's suggestions:
"I would like you to pass a piece of humble advice to him when you have the chance. Hormone treatment does more damages to him rather than vitiligo itself. Vitiligo is only a cosmetic issue, not life threatening. However, hormone will do very little to improve vitiligo, and more of a disruption to his health, causing various damanges such as:
-- skin: acne, thinner skin layer
-- uneven distribution of body fat (swollen face)
-- depressed immune system (prone to infections)
-- adrenopause (depressed adrenal cortex)
-- osteoporosis (fagile bones) or even osteonecrosis (death of the bone)
...
And the longer he's under hormone treatment, the tougher for Chinese medicine to off-set those damages. Not trying to scare anybody but simply telling the truth."
you have nice day,
yes I agree with all that, Hormone treatment should not be at all the answer or the treatment to Vitiligo.
ReplyDeleteThanks for posting
You still can use your Protopic 1st for 3 months and then you stop this treatment and start 6 months UVB treatment. Just try avoid both in the same time.
ReplyDeleteGuys please indicate your nickname at the end of your post so we can communicate with each other better.
Hi Wissam,
ReplyDeleteI believe that you are on your maintenance phase of vitiligo. I just wanna know how easy is it to repigment new spots that come back? I am new to this disease, and I am scared to death not knowing how fast or what kind of vitiligo i got. I don't know if I can handle it spreading to more visible areas.
thanks,
janee
Yes, I am.
ReplyDeleteI have the spot near my lips, it is coming back every 2 month, and I have to treat it with UVB and I found something very interesting, using vitamin and minerals supplement (daily tablet), will help to suppress the potential of Re-Vitiligo or ( what I like to call it ,Returned Vitiligo), Thus, I found that fighting with Vitiligo should be continuous effort, and if you are lazy to conduct your UVB for few weeks, then that white spots will definitely come back and win the war.
Yes I was lazy sometimes, and that spot near my lips have came back to life and I am fighting again and again, but it is all under control, means there is no development in my Vitiligo to new areas. Even I have new one on the back of my neck !!
I also would like to mention here, that the Vitiligo is very much connected to your life style, psychological status, so as example if you are student, you will find that Vitiligo will get very strong and active during examination period, when your brain and body are very much in stress. Or if you are working then be careful during work stress period.
Yes guys we have to keep fighting Vitiligo forever, there is NO permanent cure.
I wish you all the best.
keep all the good post
Wissam, I just started using uvb start with 20 second then increased another 20 second I have reached my 2 minutes and it turned pink and it stay pink for the last three days. should i wait for my skin to turn back normal before the next treatment or i should go ahead and treated every other three days even thou it is still pink.
ReplyDeleteJimmy
thanks for replying!
ReplyDeleteso would you say that vitiligo, when treated early, is manageable?
janee
Yes, Please wait till your skin return back to its original color, and thus your treatment will be less frequent. Please make sure not to burn your skin, dark pink is not advisable, light to medium pink will be perfect..
ReplyDeletekeep us updated.
Yes it is manageable if you start treatment in the early stages, and you keep the treatment up. Do not ever stop taking daily supplements, especially B12, Folic acid, zink and copper.
ReplyDeleteWissam, can vitiligo suffer like us comsume alochol? very good site sir keep up the great work. i learned a lot from you site
ReplyDeleteI dont know if there is any relationship between Vitiligo and Alcohol, Please post if you have any information or link to any article or site.
ReplyDeleteThank you
Wissam, I found the link off Dr. Ben Kim site may you could share with your reader.
ReplyDeletehttp://www.drbenkim.com/vitiligo-natural-
management.htm
Wissam, about your self do you drink or eat anything you want? or you have to avoid something?
ReplyDeleteLee
hi this is janee again... thanks for replying promptly. it is somehow giving me a comfort to think that something can be done. although, i know that i have to be able to accept this if it comes to worse.
ReplyDeleteanyway, i have a question regarding the UVB timing. Do you use the same treatment time for all of the spots that you treat? Or do you have to determine the treatment time for each spot?
Thanks again for asking another important question, Yes the treatment time for each spot is slightly different depends on the location. In my case I have few small spots on my neck and they are all responding to the same treatment time of (2 min 5 sec). However, I have one spot in my arm and this require little more time like extra (10-20 sec). You really need to calibrate the time required for each spot for maximum results.
ReplyDeleteThe average time required for each skin type is different. Let us know your required treatment time?
Thank you for sharing
Wissam, after using uvb for 2 minutes my vitiligo white spot become hard. what this mean?
ReplyDeleteMike
How you started your treatment? dosage and frequency? could you tell us more details?
ReplyDeleteAs i learned from you blog I started out with 20 second follow by another 20 until i reached the 2 minuteds mark.
ReplyDeleteMike
Wissam, I used protopic on for my vitiligo recently i have pimple on my vit now it gone away and my vit whit spot now become black what is gong sir.
ReplyDeleteWang
Mike, at what time your skin became pink color, this is the time that you should use.
ReplyDeleteif your skin develop different response, then perhaps this treatment is not good for you. It is a rare case.
Wang, How long was your protopic treatment?, You need to stop and wait for your skin to return back to its color.
ReplyDeletekeep us updated.
wissam my vit became pink color at two minutes. it stay pink for the last five days and now it became kinda hard.
ReplyDeleteMike
Mike, it is Ok, just reduce the treatment time to 1 min 50 sec, (minus 10 sec).
ReplyDeleteI been using protopic for the last four months twice day. funny i never have pimple all my life after using protopic for a while pimple popped up in the vitiliog area and it now gone and it leave me with black skin instead of white spot.
ReplyDeleteWang
Wissam what your thought on mktp for segmental vitiligo?
ReplyDeletehi wissam this is janee...
ReplyDeletei just got my uvb lamp that i bought from uvclinics... it's my second treatment at 1 min. i don't know what to look for other than the skin turning pink. am i supposed to feel anything also?
thanks!
wissam are you ok?
ReplyDeleteHi, can you advise what the best way to purchase UVB lamp. I'm from Malaysia.
ReplyDeleteThanks.
You can find on Ebay, many people are selling.
ReplyDeleteWissam what type of vitiligo you have?
ReplyDeleteNang
Hi,
ReplyDeleteMy 7 year old daughter has had vitiligo for the last 12 months and on homeopathy treatment. Her vitiligo spots have been steady with a big patch under her chin. Not sure if the homeopathy is working. But I was concerned when she recently developed spots on her eyelids. I started narrow uvb light treatment yesterday. I used it on all her spots for the same amount of time, about 8 seconds each. Her chin has turned bright pink and the rest of the spots remain the same. What does all this mean? I am not using any protopic on her since its use is controversial. Please advise. And thank you for this website.
8 seconds are very short time for this treatment, some spots might require more treatment time try to increase the treatment time slowly to get the pink color for each spot separately.
ReplyDeleteWissam, please tell me how your treatment goes?
ReplyDeleteI have recovered almost 95%. thanks to UVB and Centrum® .
ReplyDeleteWissam, I used uvb for 1:20 and my second become very hard what is going on. I took your advised which I started with 20 second then 40 second until i reach little pink it was at 2:10 now i drop it to 1:10 twice a week. i might have to do it one a week what you think?
ReplyDeleteWhy you drop it to 1:10 sec?
ReplyDeletebecause the vitiligo are turned dark
ReplyDeleteWissam, can you keep us update to what treament you done so far and how does it working for you.
ReplyDeletewissam are you still are live?
ReplyDeleteWissam, I really need your help i been using protopic and uvb for the last two months to treated the vitiligo on my facial area it seem to treated good i mean gone now after a month later the thing relap coming back even i still using uvb and protopic regulary what is going on sir
ReplyDeleteYes, this is normal and it happened with me and with others, there is no permanent cure from Vitiligo, you need to keep using the UVB from time to time, for regimentation. Vitiligo cause is unknown yet even though, there are many good theories.
ReplyDeletePlease let us know more about your case in details.
wissam sorry for the late response. i have vit for 9 months. i been using protopic twice a day and 2 month ago i bought uvb narrow to treat the vit on my facial area some spots compltely gone for a while during that i am still contiune to use uvb and protopic all the sudden two months later one of the vit spot turned back to lite no white. i don't know what else to do sir. can you guide to to recovry/advise or what to eat or what to watch out for.
ReplyDeletePlease read the above comments, to get more ideas.
ReplyDeleteHi Wissam i use a self tanner (fake tan)once or twice a week to help hide my vitiligo on my face.Is it ok to use Elidel which my derm prescribed, on the skin that has fake tan? Will my skin absorb the elidel?
ReplyDeleteI would appreciate your response or anyone else who uses self tanners and vitiligo.
I am affraid, the skin should be clean, dry for effective treatment.
ReplyDeleteHi wissam thanks for the response, i would wash my skin and dry it but as you know self tanners stay on the skin for several days, so if its clean with respect to a facial wash and dry(though self tanner still on the skin as explained) would that be ok?
ReplyDeleteAlso if i was to use UVB NB would that be ok to use with a self tanner on it?
Thanks again, your answers i sooo appreciated!
It is hard for me to answer you, I did not use that before, perhaps one of the readers can answer you..
ReplyDeleteIs the 9 Watt Philips UVB 311nm tube alright?
ReplyDeleteYes.
ReplyDeleteHi Wissam,
ReplyDeletehow life been treating you my friend? can i use uvb to treat vitiligo on the right side of my nose?
yes you can, but please make sure you cover your eys and use suitable UVB blocking for your eys.
ReplyDeleteWissam, long have not vitsited you blog could please give us your condition please getting better any new treatment.
ReplyDeleteMr. Wissam, I have been using Protopic for the last ten months and uvb for the last five months. i have seen some improvement but kinda slow. can i contiune to use both or should i just use uvb and this point.
ReplyDeleteThank you.
I think you can stick to UVB alone at this time, Please give your skin a rest every 4 months of UVB treatment, like 2 weeks and then start again.
ReplyDeleteHope this will help
Wissam, has your vitiligo been stable or has it spread at all?
ReplyDeleteYes it was stable and from time to time, some spots near my lips come to fight again, I feel there is no permanent treatment for vitiligo yet, Hope good days will come..
ReplyDeleteI am very happy to hear that your vitiligo is/was stable and wish you all the best. as for me I have vit about 11 months now all of it on my right side cheek couple spots there and one on right side on the nose and one on the right side of my eye lid. my derm told me i have segmental vitiligo. for the first month it spreaded very quick then it stop. for the last 10 months now it been stable and I hope it will not spread on me.
ReplyDeleteHi I have been suffering from vitiligo for 1 year now it started on my neck so i went to a dermatologist he gave me steroids orally and topically since then i didnt knew very much abt vitiligo and its treatment but that worked within 1 month i got repigmentation and i thought its not vitiligo so i went back to my normal routine of life but after few months my spots on neck started to come back along with some new spots on my right side of left side of chin, cheek and my lip got depigmented so i went back to the derm. he told me to again repeat this treatment after that i started researching on dat subject and found that it is very dificult to treat so after dat i went another dermatologist in a big city he gave me protopic along with puva and steroids topicaly on alternative days and its been two months now and i have seen only 5% of improvement on my lip and also my hair turned white on spots i am so depressed rite now i dont know what i should do i think protopic is not helping me i am also taking vitamins b12, folic, b-complex, vit e, gingko but havn't seen any improvement please advice me am i missing something or i havn't given it enuf time and also i have some other question too does hair turning white means that ur spots are permanent if not then can the hair tirn back its color pls help me out thanx.
ReplyDeleteRegards,
Cartman
Thank you for sharing your vitiligo, 1st thing, always think that you are not alone, and many are out there with same you condition and living totally a normal life.
ReplyDeleteI advice you to start your UVB treatment as soon as possible, Please read carefully this blog and you will get details about the treatment time, frequency and other important information. I would like to invite other readers with similar vitiligo to post.
keep us updated.
Wissam, when applied protopic do i need to go outside to get some sun?
ReplyDeleteHi Wissam, thank you for putting all this valualble information together.
ReplyDeleteRelative to the application of UVB narrowband lamp, I'd like to know when you speak about for example 4 minutes treatment, is it per vitiligo spot per day, or the cumulative exposure in one day for all the vitiligo spots?
Appreciate your feedback.
No, the time is not 4 min, it is around 2 min per spot per day, and 3 days or 2 days a week, this uvb exposure time is different from skin to skin, and from spot to spot sometimes for the same skin and you have to start with only 10 sec, then second treatment add 10 sec, so you treat each spot 20 sec, continue adding 10 sec every next treatment till you reach the time that leave your skin in pink color after the treatment, this is the time required for your skin. Please do not expose your skin to more time as this will burn your skin, and can result in the spot getting bigger.
ReplyDeleteHey I am going to a dermatologist and I started the UVB three time a week it's about my 20th session and today I noticed I'm up to 2 mins and after about 6 hours while I was at work I felt my skin a little itchy, I went to the washroom and noticed my vitiligo was highlight pink very dark pink. Is this just because they cranked it up a bit or will my skin get use to it after a couple of sessions?
DeleteThank you very much Wissam
ReplyDeleteDear Wissam,
ReplyDeleteQuick question. Can you use UVB-NB on the genitals and surrounding area? This is the only place where I have vitiligo. I have just started using Protopic and hope to see some results soon. Thinking about getting a UVB-NB lamp but am I right to say that I should not use it until I have used Protopic for at least 3 months?
Would appreciate your guidance.
Thanks
Yes, you can use, only expose the effected area and cover the rest.
ReplyDeleteHello everyone,
ReplyDeleteThank you for this blog..
My vitiligo just showed up 3 weeks ago on my face, hands and bottom and I am now on Protopic.
I was wondering why no one mentions the sun treatment. I personally do it on my doctor s recommendation everyday a bit ... I hope it is going to work
JL
Hi wissam!
ReplyDeletei got vitiligo under my eyes and on both cheeks 3 months ago.i had my first appointment with dermatologist today.she gave me protopic to use it.plz tell me will it work on me.or should i start using UVB-NB lamp right now or should wait for protopic result.
Hi Wissam,
ReplyDeleteA few days ago I found two patches of vitiligo at my rear neck, together with some white head-hair regions found one year ago, which were all confirmed as vitiligo by the doctor.
For me, my past habits are quite qualified with vitiligo causes, under stress, keeping tired in continuous days, addiction of alcohol, etc. Regretful, but it's my real life which would be changed from now on.
Actually, one positive point is I have to give up most of my tiring jobs, avoid challenging stuff and keep optimistic. Now I'm enjoying the easy life.
However, one panic is still bothering me whether vitiligo would appear in my face somewhere some day. To your knowledge, how mush is the possibility?
Hi Wissam,
ReplyDeleteI have Vitiligo pretty much everywhere on my body, i.e Knees, Hips, Feet, Hands, Arms, Face, Hips, and Genitalia etc... I was prescribed Protopic 0.1 a few years ago and started to used it frequently over a 3 month period. I then stopped as (Being a little impatient) couldn’t see and effects of re-pigmentation in my skin. However I have just come back off of holiday and I have been exposed to the sun, i used P20 Sun Oil as I never burn using this, but didn’t cover my knees. I have seen significant re-pigmentation in my knees, (3/4 of the patch has disappeared). I am so excited I am getting some more Protopic 0.1 ASAP.
Please can you advise me, could the re-pigmentation occur everywhere on my body or am I getting a little too excited.
Also over the years I have frequently been looking online for a cure for Vitiligo, I have come across two products called Vitiligo Tab & Vitiligo Organics. Have you had or heard of any dealings using these two products?
Thank you - Your advice would be appreciated.
Jack
Dear jack
ReplyDeleteThank you for sharing. I think the response is different from part to part and it varies from person to person. I would suggest using UVB narrow band, as I have described in my blog. The results will be fast, however it is not cure. You have to keep using UVB from time to time for regimentation, as I do.
Vitiligo treatment is a fighting forever.
Thanks
Hi Wissam,
ReplyDeleteI just discovered your blog, and read all over. I got general Vitiligo, symmetric on my hands, face, feet, genital etc.
I'm pretty much convinced with multivitamin & Protopic 0.1% and UVB narrow bound treatment.
thank you for sharing your experiences.
I will share my results once started with the suggested treatment.
great blog
Hank - NJ
hi wissan,
ReplyDeleteis a regular kind of UV bulb effective in treating vitiligo? like the ones being use to detect counterfeit money?
been a person with vitiligo for 15 yrs now. and been on the lamp on and off, consulted numerous dermatologists in the past(all of whom said the same things), and been using steroids and protopic. but it just didn't dawn on me to ask my dermatologists if a regular UV lamp is ok to use. though, i could say that protopic worked for me.
thanks for the help.
Hi All,
ReplyDeleteI was recently diagnosed with vitiligo. I have on my left cheek, about 6 spots. I am using protopic for 3 weeks now and one of the 6 (one of the smaller ones) is almost gone. The rest are unchanged.
My dermatologist told me that the best therapy is Excimer laser like Xtrac. I will probably try it in a couple of months if protopic does not help much.
Thank you for your posting, Could you inform us with the future results of Xtrac..?
ReplyDeleteMany thanks
It might have been asked but I did not find it. I got my Protopic and it says not to use with Phototherapy and light. How are you doing it with UVB are you using the light and then applying the Protopic or are alternating days - one day protopic and one day light or are you using protopic on one area and the light on another or are you waiting a few hours between the light the protopic.
ReplyDeleteI was diagnosed with vitiligo about 8 months ago. I was given steroids but found that ruined the skin so stopped using it. I have vitiligo on my face around the lips, on my hands, knees, lightly on my elbows and isbeen now coming in on my feet. I have been using the uvb nb light in very light durations and am starting to see some progress on my right hand. I've using 15 seconds per spot every other day with the lamp but haven't seen progress till I got a bit too much sun on my hands. I'm getting the repigmentation starting around the hair follicules and seems to be gradually spreading. I'm guessing my doseage with the uvb nb lamp wasn't the success as it seemed to coordinate with too much sun exposure/ sunburn. Would it be fair to say that increasing the uvb nb exposure would get me the progress im seeing without sun exposure? -continued-
ReplyDelete-continued-. I was also perscribed protopics .1% for the specific spots around my lips but stopped using it early on as I didn't know that protopics effectiveness was reliant on longer duration. I will alternate the use of the protopics and uvb nb lamp every other day and will try increasing 20 seconds per session until I get the recommended redness but not burn. Will keep people posted on progress of protopics and uvb nb regime. Please let me know if anything else may help with treatment or if anyone has any suggestions. Good luck to all. Scottyboy3456
ReplyDeleteFor those of you wondering where to buy NB UVB wand for home use, I purchased this one with the digital readout located at the following link. I found the price as reasonable if not better than ebay. One for $263.87 and the other $343.07. These were the most reasonable prices that I found for brand new. Good luck to all.
ReplyDeletehttp://www.uvb-311nm.com/en/6-uvb-narrow-band-311-nm-for-vitiligo
Thank you very much for your post, and the valuable information, We are keen to get your update on your treatment..
ReplyDeletehi wassim ,i live in India. i have vitiligo. so i want u vb -narrow band in India? can u tell me were to get this product exact location in India?
ReplyDeletehi wassim
ReplyDeleteThank you for all the info Wissam!
ReplyDeleteThere are a lot of postings here of folks saying they just ordered or just started using the UV light.. but it seems they never come back to report on their progress. Has anyone seen positive results with UV light and Protopic other than Wissam? If yes, please give details.. percent improvement? How long before you saw results, etc.
Thanks, Mya
Do not use ultraviolet light therapy, sun lamps, or tanning beds during treatment with PROTOPIC Ointment.
Deletemedication guide.
http://www.fda.gov/downloads/drugs/drugsafety/ucm088996.pdf
I am using vitiligo natural oil from Dubai for one month Is it any good? Iwill do protopic in a month if oil does not work
ReplyDeleteI just started treatment with nb-uvb in clinic center.
ReplyDeleteThe reason to go to there because clinic center can have adjusted intensity of light (measure with mJ/cm).
Wissam, does Dermalight can adjust the intensity of nv-uvb light.
Thank
Thank you for posting,
ReplyDeleteNo, it can control the exposure time only.
Keep us updated.
Hi Wissam
ReplyDeleteYou mention that you take Centrum as part of your regimen...
I have read that Vitamin C inhibits the production of melanin,
would it be advisable to seperately take Vitamin B, Vitamin D, copper, zinc and folic acid? instead of a multivitamin?
I intend to buy a NB UVB Wand soon, as I have been using Protopic 0.1 for a few months now.
Thanks, Kyle. (Vitiligo sufferer for 15 years)
Anonymous 111: I started using protopic few months ago and it is giving some slow positive progress. I'll continuo using it for another month and after that I'll switch to the NB-UVB 311 nm lamp with Recolor vitamins. I'll keep you updated about the progress.
ReplyDeletehi wissam, i am 17 and have had vitiligo for as long as i can remember.
ReplyDeletei recently started protopic and even though its been less than a month i am starting to see very good results in most areas. i hope that as months go on it will get better and better because im going on lads holiday in july.
i have an appointment in april with my specialist so ill wait to talk to him about UVB before buying one but ill tell him about your blog and progress.
if protopic clears most of it up before april, then how long do you reckon the uvb would take to work because like i said im going on holiday in july and am wondering if the less than 3 month period between the specialist and my holiday will be enough.
from Cal
i received my uvb handheld today :)
ReplyDelete- Joel
Wissam can you teach me how to schedule my NB UVB and protopic so i may now how to alternate the two? thank you- jon
ReplyDeleteHi Wissam ,
ReplyDeleteI have been using protopic 0.1% for 4 months and I see no improvement . It seems to be getting worse. Im now interested in the Dermfix 900 . My dermatologist said I shouldnt be doing treatment at home and said it needs to be done in a clinic. The clinic is to far from where I live . Is it safe for me to try at home treatment ? Also, where can I order a Dermfix 900 ?
Hi Wassam,
ReplyDeleteI am suffering from vitiligo a year ago. I have few patches near my both ears, and few in my chest. I was diagnosed with this disease only a week ago and I am given protopic 0.1%.
I don't know how to use this medicine. So, I have few questions
1. Can I use sunscreen in the patches after I apply protopic?
2. If I can, then after how much time I can apply sunscreen after using protopic?
3. I found in web that, you need sun exposure also. So, can I expose to sun when the protopic is in my body?
4. Regarding question 3, what my idea is, I will expose to sun early in the morning for 5-10 minutes every other day only before applying protopic. Is it okay?
Please suggest me method of applying protopic and exposing to sun.
Aliyah
Thailand
Hi Wissam,
ReplyDeleteI just read through your blog as I developed vitiligo back in 2004 but only within the last month has it increased dramatically all over my hands, arms, face and genital area's. I saw my dermatologist and he prescribed fluocinoide but it didn't work, I tried protopic but it didn't work for me before but I am going to try it again soon. I looked at purchasing a UVB lamp but they are crazy expensive, although I did find one that was a little cheaper for 300 usd. Does the lamp matter or just the bulb? I don't want to buy one from china or internationally then find out it isn't that great. The ones here in the US at 795 usd and that is out of my price range currently. If you have any suggestions on nb/uvb lights, let me know. I saw ones on ebay for 130 bucks but do i want one with 2 tubes or is one tube ok and how do you know which are quality? I dont know anything about them and so many sites just say that the bulb needs to be 311 nm. Any suggestions, I would love to hear. I wish there was a site comparing them or suggesting best places to get them.
Thanks
KD
Hi KD
DeleteThank you for posting, I recommend using UVB light narrow band like dermalight available in eBay or amazon, please check my blog for usage bad recommendation.
hola , soy de argentina y me he informado mucho leyendo este blogs , estoy por empezar el tratamiemto con uvb y protopic , lo unico que tengo que averiguar es como cuidarme la piel ya que padesco del fenomeno de koebner , si alguien sabe aldo sobre el tema se lo agradesco , saludos.
ReplyDeleteI am 41 years old and have been diagnosed with vitiligo 6 months back. After all the research, got a prescription for protopic from the doctor. Planning on using it for 3 months till I visit the doctor and reading through the blog feel confident on its usage. Will try Narrowband UVB after couple of months since I want to see the result with the use of Protopic. Any suggestion on use of Protopic for best results would be appreciated. Thanks.
ReplyDeleteHi Wissam,
ReplyDeleteI started on multivitamin + minerals 6 months ago then was on the Aegean beach for 3 month summer vacation when I noticed lots of freckling, I started Protopic (mostly on my face)in July and just tanning every day morning and late afternoon with protection, now I'm back in the USA and started the UVB NB about a week ago. My vit is quite extensive, I was about 80% depigmented, but now I'm about 70% pigmented, mostly freckles on my body but my face is almost 95% healed. So 2 months on Protopic + sun worked great on my face, my body lots of freckling mostly where I was tanning, my legs, arms. Now I'm just working with the UVB I got a 6 lamp 6 foot tall Panosol II. How long did it take you to repigment? Did you use the Protopic on your body as well? My neck is not really responding or very slight. I'm currently just doing 1min 20seconds per side (front back)
Your advise would be appreciated.
Sincerely
Angela (NYC)
Hi I have just gotten diagnosed with vitiligo. I am prescribed protopic. I am wondering if I can use makeup and sunscreen over protopic? Do I need to wait for an amount of time before I can apply sunscreen?
ReplyDeleteHi I have had vitiligo for about 5 or 7 years. I'm 15 and I started using protopic about 2 weeks ago. I have 2 white spots on my face. How long till I see a difference ? Or what other treatments should I start using . Please answer back ASAP. I want to be vitiligo free.
ReplyDeleteI have had vitiligo for about 5 to 7 years . I've had protopic for about 4 years. When I first got protopic I used it for about two weeks, and quit using it. I guess I'm supposed to use it longer than two weeks ? Now I started again, I started about 1 week ago. How long till I see any improvement ? I want to get rid of my white spots on my face. Is there any other treatment to get rid of my white spots ? If so, please respond. I want my skin back.
ReplyDeleteI am using protopic and NB. UVB. For my 8 year old son? He has vitiligo spots on both knees both hands and both feet, I am on 4 min duration of light, but I don't see and pinkness on the spots , we have olive skin color, can somebody please reply ,I am using dermalight brand wand.
ReplyDeleteI have been using protopic and NB uvb dermalight on my 8 year old son, he has vitiligo on both knees ,fingers of both hands and feet, I am 4 min time on light but I don't see any pinkness , can somebody please reply, we have olive skin tone,
ReplyDeleteI have started protopic and dermalight on my 8 year old son, for last one month ,I am on 4 min duration of light but still don't see any pinkness on the white spots, he has on both knees , fingers of both hands and feet, please advise
ReplyDeleteI am using dermalight and protopic on my 8 year old son, on both knees ,elbows hands,I am on 10 minute duration time but don't see any pinkness , please advise
ReplyDeleteMaureen,its not advisable to use protopic with Dermalight,use one at a time...ie stabilise the immune system with protopic for about 2 month then stop and activate the repigmentation process using UVB light,preferably phillips Brand!!!!
DeleteIam maryam, Iam 45 years old ,Iamm engineer ,Iwant your help and hope to kill vitiligo,now Iapply protopic 0.1 from 2 weeks Isee THat the area in my face not so white as before , what you say . is there a hope or not
ReplyDeleteHi Wissam and all people, I am from Spain, I have visited 2 doctors and they recommended Protopic 0,1 + uvb 311nb combined. I have vitiligo in hands (next to all nails and small spots in the hand). They said to me that in the hands are more difficult but recommended to try.
ReplyDeleteLast summer I started with Protopic 0,1 and stopped my vitiligo and improved a little bit.
One month ago, a wellknown vitiligo doctor recommend me Khelina 3%, it's a cream made in pharmacy, that you put in vitiligo area only about 30 minutes, then you clean it and expose the area to the uvb 311nb. I start this week combined to Protopic and UVB. Although the Vitiligo in hands could be more difficult to cure I will try this and explain to you if I have better results.
Regards!
I forgot to comment that also doctor recommended me Heliocare vitamine ultra-D , bottle of capsules with vitamines C (25%) , D (100%) , E (100%) to help the uvb and protopic treatment.
ReplyDeleteThis is a topic which is near to my heart...
ReplyDeleteBest wishes! Where are your contact details though?
Have a look at my homepage; Gluton Free diet
Asking questions are actually fastidious thing if you are not
ReplyDeleteunderstanding anything completely, but this paragraph gives pleasant understanding even.
My web page: Http://miraclefatburn.Net (www.Momtv.com)
Hello Wassim,
ReplyDelete2 years back i got vitiligo on my foreskin of testicles.
From one week i have been using
Zincovit(morning & night)
Trimop forte(2 minutes before exposing to uv light)
Tacroz (after exposing to UV light).
Yesterday i have increased the time to expose to UV light. So it got turned into pink,is it normal or the tissues got damaged?
I am really worried about it.So please suggest me
Hi Reddy, thanks for posting, no worries, pink color is all what you need to achieve when using UVB, please review my blog, to learn more from my experience.
ReplyDeleteHi Wassim,
ReplyDeleteThanks for the Reply.Today it came to normal color.
No pain No itchy,but when i called to my Doc he said that it might have got damaged.better come & check it up.
DO i need to go to doc?
Again from today how much time i need to expose to UV?
And my doc prescribed me to apply Tacroz after exposing to UV light,is it right?bcz in some comments u told no need to apply any ointments.
hi wassim..
ReplyDeletemy doc suggested me to expose my white patches after applying tacrolimus to the sun.. I did it for 2 days and my skin kind of turned grey.. what should I do?
Hi Wissam. Great blog.
ReplyDeleteI recently bought a UVB Wand from here:
http://www.favoriteplus.com/dermahealer-uv-b-phototherapy-lamp-for-psoriasis-vitiligo-eczema.php
It comes with a Philips UVB Narrowband PL-S 9W/01 lamp and a inbuilt timer.
I have been using day in day out on my arm and hands, i have small patches so far.
But i reached the 04:40 minutes mark and still i dont reach the light erythema color (light pink).
I always wait 24h to see if the skin turns pink
Anyone here had the same issue. What was the maximum time that any of you used the light (minutes)?
I am european from Portugal. I have white skin during winter but i tan very easily in the summer.
Thanks to all and keep sharing your experiences
hi Joan, it's Roberto from Spain, I have the Philips UVB 311nb, I put 1 min 20 sec. 4 days per week and I my white spots turns into pink. Maybe if you tan very easy could be the difference. Which distance do you apply from the lamp to your spots? I apply directly 2 cm distance over my skin.
ReplyDeleteRoberto.
Hello. I use a 3 cm distance. I use the comb attachement to maintain that distance.
DeleteMy pubic spots have the pink reaction with 40 seconds, but not my hands.
I once tried 8 minutes in my hands without results, i think that might be a very dangerous dosage so i´m back to 4.40 minutes.
I am using diprosone steroid cream 1x a day in the morning and protopic 1x day night.
I´m also using Sesderma Vitises gel 2x a day and also Vitises KT once a day and 30 minutes before my treatments every 2 days.
My doctor recommended me to apply Khelina 30 minutes before the lamp, to increase the reaction made by the lamp. I see you're using Vitises KT it may be similar to Khelina cream. Do you see good results into your white spots with these products and UV lamp ?
ReplyDeleteRoberto