My Vitiligo...Update

Hi... I am so happy today to document that, Protopic really worked it magic... the white patch near my lips started to repigment slowly...WAW.. it is really works.. I started my UVB narrow band and just reached the 2 minutes 20 seconds recommended from many sources, However, I think I need to increase the exposure for additional 20 sec, as I did not reached the pink color after the treatment yet, I guess this is due to my skin grade ( I am from middle east, white skin), but I think this ointment is just enough to do the job.. I would recommend every Vitiligo sufferer to use it immediately.. I was using it for almost 2 months now, The dosage is twice a day.. The patch on my hand was repigmented 80% and still progress to the 100%.. I will update you with photos shortly... God Bless

Everything about Vitiligo

What is vitiligo? Vitiligo is a relatively common skin disorder, in which white spots or patches appear on the skin. These spots are caused by destruction or weakening of the pigment cells in those areas, resulting in the pigment being destroyed or no longer produced. In most cases, vitiligo is believed to be an autoimmune-related disorder. Although researchers are not exactly sure what causes the automimmune response, more is being learned every year. In vitiligo, only the color of the skin is affected. The texture and other skin qualities remain normal. What is an autoimmune disorder? An autoimmune disorder is any of a number of conditions in which a person's immune system reacts against the body's own organs or tissues, and the person's immune system produces antibodies to them. An autoimmune disorder is NOT an "immune deficiency". In the case of vitiligo, we believe that the immune system probably sees the person's own pigment cells as foreign bodies, and attacks them, destroying them or weakening them. Other examples of autoimmune disorders include thyroid disorders, alopecia areata, lupus, and pernicious anemia. What is a Melanocyte (Pigment Cell)? A Melanocyte is a specialized cell located in the skin, which produces melanin (pigment). Surprisingly, all humans have roughly the same number of pigment cells in their skin. Those with darker toned skin, have pigment cells that are able to store more melanin within them. In the diagram below, the cell with the tendrils, marked "I" is the melanocyte. The brown color within the cell is the melanin. The cell uses the tendrils to distribute the melanin evenly throughout the skin. What is Melanin? Melanin is a dark brown pigment of skin and hair in animals, particularly vertebrates, derived from the amino acid tyrosine. It is synthesized by special cells called Melanocytes, which also store the melanin. What are the symptoms of vitiligo? People who develop vitiligo usually first notice white patches or spots (depigmentation) on their skin. The skin remains of normal texture, and there is usually no itching or other symptoms. These patches are more obvious in sun-exposed areas, including the hands, feet, arms, legs face, and lips. Other common areas for white patches to appear are the armpits and groin and around the mouth, eyes, nostrils, navel, and genitals. Vitiligo generally appears in one of three patterns. In one pattern (focal pattern), the depigmentation is limited to one or only a few areas. Some people develop depigmented patches on only one side of their bodies (segmental vitiligo). But for most people who have vitiligo, depigmentation occurs on different parts of the body (generalized vitiligo), often similar on each side of the body. In addition to white patches on the skin, some people with vitiligo may experience white hair growing in on the scalp, eyelashes, eyebrows, and beard. In extremely rare cases, vitiligo can affect eye color or the pigment of the retina. I have vitiligo patches on my underarms, my feet and my genitals. Is this common? For reasons we don't really understand yet, there are certain parts of the body, which are very commonly affected in those who have vitiligo. The face, underarms, hands, wrists, fingers, feet, elbows, knees and genitals are among these areas. There are many theories about why such sensitive areas of the body seem to be commonly affected - the presence of many nerve endings, the bony nature, sweat glands, etc. How does vitiligo develop? The course and severity of pigment loss differ with each person. In most cases, vitiligo begins in a small area. Over time, other spots may appear, while existing spots may grow larger. Some people notice that their vitiligo may stay the same for years or even decades, and then suddenly new areas of depigmentation may occur. Occasionally, vitiligo patches will repigment spontaneously, all by themselves, with no treatment whatsoever. Most people with vitiligo do notice this happening at one point or another. Will the vitiligo patches spread over time?Will they get larger? In many, but certainly not all cases, vitiligo does progress slowly over time, but there is really no way to tell whether your vitiligo will progress or not. It is a slow progressing condition however, and most patients report that they may go many years without new patches developing, and then may discover new patches appearing years later. Some people even report spots that spontaneously repigment, with no treatment at all. Use of new technologies however, may be able to arrest new spots in their development. What is segmental vitiligo? Some people develop vitiligo only in one or a few limited areas of their body. This is called segmental vitiligo. People with vitiligo can have a combination of segmental and generalized vitiligo. What is generalized vitiligo? Most people find that their vitiligo develops in a generalized way, very often with bilateral characteristics, meaning that if a vitiligo patch appears on one elbow, it very often appears on the other elbow about the same time. Is vitiligo at all contagious? Vitiligo is NOT contagious. If it were, many more people in the world, including doctors who treat vitiligo and family members of those with vitiligo, would have the condition. There are many theories about what causes vitiligo, but most experts believe, and data supports the theory, that one must be genetically susceptible, in order to develop vitiligo. Where does the word "vitiligo" come from?The word "vitiligo" comes from Latin. The first part of the word, "viti" is from the Latin word "vitium" meaning a mark or blemish. The suffix, "ligo" is a common Latin ending meaning to bind or cause. Thus, vitiligo means, "to cause a mark or blemish", which is of course what the condition does. How do you pronounce the word "vitiligo"? Most people pronounce this word incorrectly the first time they see it. But to hear it correctly, say the words "Little I Go." Then replace the first "L" with a "V" - giving you "Vittle I Go." Run the words together and you have the correct pronunciation. CAUSE AND EFFECT What causes vitiligo? There are many theories about what causes vitiligo, and no one is positively certain. However, experts are almost certain that a genetic predisposition or susceptibility to vitiligo exists in nearly all people who develop vitiligo. Vitiligo may result from a number of factors -- autoimmune, oxidative stress (excess of hydrogen peroxide), neurotrophic (interaction of melanocytes and the nervous system), and toxic (substances formed as a part of normal melanin production actually being toxic to melanocytes) hypotheses have been advanced. The mechanism involves progressive destruction of selected melanocytes, probably by cytotoxic T-cell lymphocytes. In most cases, it is believed that Vitiligo is a type of autoimmune disorder, in which the body's immune system sees the pigment cells in the skin as foreign bodies, and attacks them. The basis for this autoimmune disorder is thought by many to be genetic. It is believed by many that stress, traumatic events, injury, or severe sunburns, may trigger or exacerbate vitiligo in those who are susceptible. Other theories include the possibility that an abnormally functioning nervous system may produce a substance that injures melanocytes. Some believe that melanocytes in vitiligo patients may self-destruct, releasing toxic byproducts that then destroy other pigment cells. Another theory suggests that vitiligo is entirely genetic, and that there is a defect in the melanocytes that makes them more susceptible to injury. We know that some cases of vitiligo arise from exposure to certain chemicals, for example, phenols used in photography. Surgery wounds or injuries to the skin have also been known to result in vitiligo, which can spread. The question is, are those people susceptible to vitiligo to begin with. Many experts say yes. Finally, there are alternative theories about vitiligo that suggest diet, nutrition, and digestive disorders may play a role in the destruction of melanocytes. Some believe that internal pathogens within the digestive tract, such as yeast proliferation, might relate to vitiligo. What is oxidative stress?One of the newer theories in the cause of vitiligo is oxidative stress. Oxidative stress is an over-accumulation of hydrogen peroxide in the skin. Every person develops hydrogen peroxide in the skin, as a result of natural biological processes. An enzyme called "catalase" normally breaks down the hydrogen peroxide in the skin into water and oxygen. However, people with vitiligo may have a problem manufacturing catalase, or in their body delivering the catalase to the skin. Many experts feel that the increase in hydrogen peroxide in the skin may be one of the root causes of vitiligo, and in fact, studies have suggested that most people with vitiligo exhibit this "oxidative stress." Some have even theorized that the autoimmune response in vitiligo could be related to the oxidative stress. Viruses and bacteria produce hydrogen peroxide, and so the presence of it in our skin could conceivably be triggering the immune cells to attack our pigment cells. Many people report first noticing their vitiligo after traumatic events, periods of stress, or severe sunburns. Special machines used to measure levels of hydrogen peroxide in the skin show that these events may actually increase oxidative stress in the skin. Is it true that genetics may play a part in vitiligo? Most experts believe that there is a genetic base to vitiligo which leads to susceptibility. Though not common, there are enough family's where vitiligo is seen in more than one member, that a genetic theory can be established. Though no one else in your family may show signs of vitiligo, it is still possible that it is passed on genetically. The most likely reason for this is that more than one gene is responsible for the development of vitiligo. It is a combination of genes that may prove to be the critical factor and it may also need some stimulus to cause the condition to onset. Genes are inherited in a random fashion from both parents, so only sometimes will the genes which make a person susceptible to vitiligo come together in the same person. Those who do not inherit a complete set of the abnormal genes are unlikely to develop the disorder. Those people who do inherit a complete set may also need some other factor to trigger the vitiligo patches to appear. In this way vitiligo genes can pass through several generations of a family without anyone actually developing vitiligo.Currently, researchers are studying the genetic aspects of vitiligo, using gene-sequencing computers and the mapping of the human genome to determine how genetic therapy and technology might help treat or arrest vitiligo. What is genetic susceptibility? This is the theory that the susceptibility or predisposition to vitiligo is genetic, and that some defect in the genetic structure, makes people more susceptible to vitiligo. While we do see vitiligo in more than one family member about 20% of the time, about 80% of patients report no other family members with vitiligo. Most experts agree that not everyone who is susceptible to vitiligo will necessarily develop it. Recent genetic studies, which ran the DNA of thousands of people with vitiligo through gene sequencing computers, have produced important information about the enzyme operations in the bodies of those with vitiligo, which may help researchers better understand how to treat the underlying cause of vitiligo. As with all genes, people may carry the defect that causes vitiligo, and even pass it on to their children, without ever developing vitiligo themselves. Thus other factors, including environmental and personality factors, may play a role in the onset (beginning) of vitiligo. Is it true that exposure to certain chemicals can cause vitiligo? It is almost certain that some chemicals, particularly photography chemicals such as Phenols, can trigger vitiligo in those who are susceptible. Phenols can also be found in many types of hair colorings, household stains, and similar products. There are other industrial chemicals and substances which may also trigger the onset of vitiligo. Are there things that a person with vitiligo should avoid? In addition to the phenol type chemicals listed in the previous paragraph, there are other things and activities which people with vitiligo should avoid. Unfortunately, the list of activities, products and chemicals to avoid varies, depending on who you talk to. Are there any other symptoms? Will Vitiligo lead to other conditions or diseases? Other than the white patches of skin, there are no other physical symptoms of vitiligo. As a secondary effect, vitiligo patches will tend to sunburn more easily, and sunscreen is often recommended. Is it true that some vitiligo may be related to a suppressed immune system? Yes. While MOST cases of vitiligo seem to involve overactive immune response, in which the immune system is essentially attacking its own pigment cells, a minority of cases may be related to a suppressed immune response. Many experts feel that a suppressed immune system CAN co-exist with an autoimmune condition. For this reason, many doctors choose to evaluate immune function, especially in advance of using certain treatments, such as those which work to suppress the immune response. Some doctors feel that there may be other factors at play in autoimmune disorders such as vitiligo, which may relate more to the function and "programming" of the immune system, rather than the actual strength of the immune system, hence the reason why vitiligo may still be able to exist in an immune-suppressed individual. Are there other conditions related to vitiligo? Vitiligo in of itself does not appear to "lead" to other conditions. However, there are other autoimmune-related conditions, which may arise in vitiligo patients, and that may even arise from the same genetic disorder that results in vitiligo. Thyroid disorders (especially hypothyroidism) are quite common in those with vitiligo, and many doctors feel treating thyroid disorders is important in treating vitiligo. Other related autoimmune conditions are much rarer, but include alopecia areata, pernicious anemia, lupus, and occasionally diabetes. To worry that these other conditions will arise is unwarranted, as they are not very common. But understanding these other conditions, and knowing about their symptoms, may be wise. Nevertheless, most people with vitiligo have no other autoimmune disorders. How is thyroid function related to vitiligo? Thyroid disorders are extremely common in every ethnic and racial group on the planet. The thyroid is a small, butterfly-shaped gland just below the Adam's apple. This gland plays a very important role in controlling the body's metabolism, that is, how the body functions. It does this by producing thyroid hormones (T4 and T3), chemicals that travel through the blood to every part of the body. Thyroid hormones tell the body how fast to work and use energy. Because vitiligo may well be related to numerous functions within the body, a properly functioning thyroid (or sufficient supplemental hormone) could be important in treating vitiligo. What is alopecia areata?Alopecia areata is a fairly common condition (ranking with vitiligo) that results in the loss of hair on the scalp and elsewhere. It usually starts with one or more small, round, smooth patches. It occurs in males and females of all ages, but onset most often occurs in childhood. In alopecia areata, the affected hair follicles become very small, drastically slow down production, and grow no hair visible above the surface for months or years. It is not the same as male pattern baldness, which is a much more common genetic condition in males.Current research suggests that something triggers the immune system to suppress the hair follicle. Recent research indicates that some persons have genetic markers that may increase their susceptibility to develop alopecia areata. Some believe alopecia may be one of vitiligo's closest relatives, because of the autoimmune nature of the condition. However, only a very small percentage of people with vitiligo also develop alopecia areata. Alopecia areata may result in symptoms (skin pigment loss) which appear similar to vitiligo, and some vitiligo patients are initially diagnosed with alopecia. However, proper medical examination can determine which condition is present. Are there treatments I should not use if I am pregnant?There are definitely some medications which will pass through the placenta to your fetus. If you are pregnant, you should definitely consult with both your dermatologist and your obstetrician regarding any risks to the various types of treatments available for vitiligo. If I am pregnant and have vitiligo, will my child develop vitiligo?Most people with vitiligo have neither parents, nor children, nor siblings with vitiligo. Many have no other relatives with vitiligo. Vitiligo does appear to be hereditary, that is, it can run in families. Children whose parents have the disorder are more likely to develop vitiligo. There is no question about that. However, most children will not get vitiligo even if a parent has it, and most people with vitiligo do not have a family history of the disorder. So the chances of your child developing vitiligo appear to be very small. Nevertheless, there are sufficient numbers of families where vitiligo does appear among siblings, parents and children, such that we can assume a genetic factor. Am I at greater risk for skin cancer because of my vitiligo?While there is some disagreement in the medical community, many vitiligo experts believe there is not an increased risk for skin cancer in vitiligo patients. According to Pearl Grimes, MD, considered one of the world's leading medical experts on vitiligo, "the current data show no increase in skin cancer in vitiligo patients, both within the vitiligo patches, or the normal skin...either way."Some in the medical profession believe there may be no increased risk in the case of melanomas, but that there may be a slightly elevated risk for some types of carcinomas.Additionally, is PUVA or UVB associated with an increase in skin cancer in areas of vitiligo? Dr. Grimes says no. In psoriasis literature and articles, we do see an increase in skin cancer for those treating with UV light. But this is NOT the case for vitiligo patients. Dr. Grimes thinks this is due both to the WAY they are treated, and also something in the property of vitiligo patches that creates a protection from skin cancer. In the case of Narrow Band UVB itself, many suggest that UVB is less carcinogenic. Dr. Grimes is fairly sure that is the case, but more data is needed first, since UVB and narrow band UVB are so new. But it appears that UVB is safer as far as skin cancer. Can vitiligo cause loss of eye color? Can it cause blindness?In a very, very small percentage of people with vitiligo, eye color pigment may be affected by vitiligo, however, there is no data or evidence of anyone suffering any weakening or loss of vision due to vitiligo. This is a myth that got started in the vitiligo community several years ago, and has no basis in fact. PEOPLE AND HISTORY Who is affected by vitiligo?About 1 to 2 percent of the world's population, or from 50 to 100 million people, have vitiligo. In the United States, 2 to 5 million people have the disorder. It is suspected that some countries may have higher incidents of vitiligo, for various genetic and societal reasons. Ninety-five percent of people who have vitiligo develop it before their 40th birthday, most between the ages of 10 and 30. The disorder affects all races, ethnicities and both sexes equally, which suggests that it truly is a human problem. Even on remote islands where the population is completely homogenous, we see instances of vitiligo. People with certain autoimmune disorders do seem to be more likely to develop vitiligo, although the opposite is not true. These autoimmune disorders include hyperthyroidism (an overactive or underactive thyroid gland), adrenocortical insufficiency (the adrenal gland does not produce enough of the hormone called corticosteroid) , alopecia areata (patches of baldness), and pernicious anemia (a low level of red blood cells caused by failure of the body to absorb vitamin B12). How many people have vitiligo? About 1 to 2% of the world's population has vitiligo, which means anywhere from 50 to 100 million people are affected. 100 million people is roughly the population of California, New York, Illinois, Florida and Texas combined. How long has vitiligo existed? We believe that vitiligo has existed at least as long as the recorded history of man, and probably before that. References to vitiligo patches are mentioned in the bible, and in ancient Chinese and Greek writings. Is it true that singer Michael Jackson has vitiligo?Back in the 1980's, many fans could not understand why singer Michael Jackson was bleaching his skin white, and even made fun of him. In the early 1990's, Michael and his doctor revealed that he did indeed have vitiligo, and had chosen to depigment completely using a special medicine. Though certainly painful for him, this created a significantly greater awareness and understanding of vitiligo than had ever before been seen. There are in fact many celebrities, and even government leaders in the U.S. and the world, who have vitiligo. DOCTORS AND TREATMENTS How is vitiligo diagnosed?If a doctor suspects that a person has vitiligo, he or she usually begins by asking the person about his or her medical history. Important factors in a person's medical history are a family history of vitiligo; a rash, sunburn, or other skin trauma at the site of vitiligo 2 to 3 months before depigmentation started; stress or physical illness; and premature graying of the hair (before age 35). In addition, the doctor will need to know whether the patient or anyone in the patient's family has had any autoimmune disorders and whether the patient is very sensitive to the sun. The doctor will then examine the patient to rule out other medical problems. The doctor may take a small sample (biopsy) of the affected skin. He or she may also take a blood sample to check the blood-cell count and thyroid function. A blood test to look for the presence of antinuclear antibodies (a type of autoantibody) may also be done. This test helps determine if the patient has any other autoimmune conditions. One doctor told me vitiligo could not be treated. Is that correct?Vitiligo is difficult to treat - that much is true. But in the past few years, new treatments have been developed that are working better. And there are more options. Vitiligo can be treated, though results can take time. Even though treatment can take from 6 months up to two years or longer to see results, there are many treatments out there to try - and some newer treatments are showing faster results. Where you don't see good results with one treatment, another may work better. Many doctors are only familiar with PUVA and steroid creams, older technologies in treating vitiligo (though certainly quite viable and successful for many). The reason for this is twofold. On the one hand, many dermatologists are very conservative when it comes to treatment, and for many reasons, are not quick to try new things. On the other hand, vitiligo is just one aspect of a dermatologist's practice, and many doctors simply cannot stay abreast of all new treatments. A doctor told me vitiligo was just cosmetic, I was lucky I didn't have cancer, and not to worry about it. Is he right?No. While it's true that vitiligo is not fatal, and that it has no other physical symptoms other than white patches, the emotional and social effects of vitiligo on people are well-documented. Vitiligo should not be dismissed by a doctor as merely cosmetic. If this occurs though, do not be angry. Explain to the doctor that this condition is hurting you psychologically, and that it is important to you that your condition be taken seriously. What treatment options are available?Today, there is more research and more treatments options available than ever before. In addition to the traditional therapies such as the PUVA system and steroid creams, new technologies have been developed, including narrow-band UVB, Pseudocatalase cream and potentially lasers, skin grafting and pigment transplantation. There is no one treatment that works for everyone. Different therapies work better for different people. While one person may respond extremely well to PUVA, another may respond better to narrow band UVB or immunomodulators. For this reason, many vitiligo experts will try different therapies on a patient until they find what works best for that person. How long does it take to treat vitiligo? When should I expect results?Results from the treatments available vary by person. Some people will see results from treatment within 3 to 6 months. Others may not see results for 8 months. With immunomodulators, some people are reporting some repigmentation with 4 to 8 weeks. For others it is taking longer. The rule of thumb, is that you will need to allow at least 3 to 6 months before you begin to see results from ANY treatment. Additionally, you should expect to treat for up to two years or longer, in order to see good results. If you try a treatment for 3 months, and then quit because you saw no results, you did not wait long enough. Are there any new treatments being worked on?In addition to some of the new treatments mentioned above, one of the newest treatments for vitiligo is an ointment called "Protopic." Protopic is an immunomodulator ointment, which may address the underlying immune system issues in vitiligo. A cream form of immunomodulator is now available called Elidel. More research and development than ever before is being conducted about vitiligo and treating it. Even the mapping of the human genome, and the advent of gene sequencing computers, show much potential. What is PUVA?PUVA is one of the oldest methods used for treating vitiligo. Oral PUVA therapy is used for people with more extensive vitiligo (affecting greater than 20 percent of the body) or for people who do not respond to topical PUVA therapy. Oral psoralen is not recommended for children under 10 years of age because of an increased risk of damage to the eyes, such as cataracts. For oral PUVA therapy, the patient takes a prescribed dose of psoralen by mouth about 2 hours before exposure to artificial UVA light or sunlight. The doctor adjusts the dose of light until the skin areas being treated become pink. Treatments are usually given two or three times a week, but never 2 days in a row. The person must avoid sunlight after treatment for 12 hours, and must wear wrap around sunglasses to protect their eyes. The most common side effects of PUVA are sunburn, and stomach upset due to the psoralen pills. Most patients find that eating something heavy before taking psoralen pills, such as ice cream or french fries or a hamburger, greatly reduces or eliminates an stomach upset. What is a topical steroid cream or ointment? Steroid creams include such brand names as Elocon, Ultravate, Cyclocort, Descort, Pramasone, and Tridesilon. If the suffix of a drug ends in "-ate," "-one" or the word "cort" is in it, it most likely contains a steroid or steroid derivative. Other names may be used though.Although still not completely understood, steroids may be helpful in repigmenting the skin, particularly if started early in the condition and where only a few patches or spots need to be treated. Corticosteroids are a group of drugs similar to the hormones produced by the adrenal glands (such as cortisone). Doctors often prescribe a mild topical corticosteroid cream for children under 10 years old and a stronger one for adults. Patients must apply the cream to the white patches on their skin for at least 3 months before seeing any results. It is the simplest and safest treatment but not as effective as some other treatments. Treatment must be carefully monitored, as steroids can thin and damage the skin if not carefully watched. What is a steroid? Steroid is the greek word for hormone. Some steroids occur naturally in the body, such as cortisol, sex hormones, bile acids. Cortisol is essential for all life. There are many kinds of steroids, Cortico, Glutico, Sex Hormones and Anabolic steroids. When synthetic steroid hormones are prescribed and used correctly, they can be very helpful, and their side-effects can be greatly reduced. But when safeguards are ignored, damage can result. What is topical psoralen therapy? Topical psoralen photochemotherapy often is used for people with a small number of depigmented patches. It is also used for children 2 years old and older who have localized patches of vitiligo. Treatments are done in a doctor's office under artificial UVA light twice or three times a week. The patient applies a thin coat of psoralen to the patient's depigmented patches about 30 minutes before UVA light exposure. The patient is then exposed to an amount of UVA light that turns the affected area pink. The doctor usually increases the dose of UVA light slowly over many weeks. Eventually, the pink areas fade and a more normal skin color appears. Most patients wash off any topical residue after treatment. The two major potential side effects of topical psoralen therapy are sunburn and blistering and occasionally too much repigmentation or darkening of the treated area or the normal skin surrounding the vitiligo (hyperpigmentation). Hyperpigmentation is usually a temporary problem and eventually disappears when treatment is stopped. What is Narrow Band UVB?Narrow Band Ultra Violet B Light is a relatively new technology on the vitiligo front. In the past, most doctors have used the PUVA system, which involved the use of Ultra Violet A light exposure and the taking of Psoralen pills. However, side effects for many people were unbearable. Narrow Band UVB light panels and cabinets solve the problems of over-exposure to ultraviolet by maximizing delivery of narrow-band UVB radiation (in the 311-312 nanometer range, the most beneficial component of natural sunlight) while minimizing exposure to superfluous UV radiation. This narrow band allows patients to receive photo-therapy treatments with less risk of severe burning or pathogenic exposure to UV in harmful ranges. It also avoids the adverse side effects of the psoralens used in conventional PUVA therapy, since UVB treatment does not require that any medications be taken. These benefits have made Narrow Band UVB systems increasingly popular with vitiligo patients and their doctors, and even home systems are available. What is Protopic Immunomodulator?Protopic immunomodulator (Tacrolimus) is a fairly new treatment being used for vitiligo. A probable new advance in the treatment of vitiligo, Protopic, an ointment made by Fujisawa Pharmaceuticals in Japan, works to down-regulate (suppress) the immune response in a local area of skin, where the vitiligo is located. The ointment is showing very good success in many (but not all) people who are using it. Protopic ointment is currently indicated for the treatment of moderate to severe atopic dermatitis (eczema). The most common advice for patients by doctors is to apply the ointment twice a day. Many doctors also recommend their vitiligo patients to get some natural sunlight few times a week for 15 to 30 minutes. Some doctors are testing Narrow Band UVB with Protopic as well. The product is available in .03% strength (usually for children) and the stronger .1% strength . Protopic immunomodulator ointment, is made from a rare soil bacterium found only on the island of Honshu in Japan. This soil bacterium appears to have unique qualities in supressing immune response.Most experts believe that vitiligo is the result of the immune system mistakenly generating antibodies to one's own pigment cells, which then attack and kill or weaken such cells. When applied locally to vitiligo-affected skin, Protopic may prevent the immune cells from attacking the pigment cells, so that the pigment cells can grow and reproduce. Most reassuring to many, is that Protopic does not seem to be readily absorbed into the bloodstream or body, keeping the treatment fairly localized.Approved by the FDA for use on eczema (but not yet on vitiligo), many patients have expressed good results in treating their vitiligo. A recent press release by Dr. Pearl Grimes, a well-respected authority on the subject of vitiligo, indicated the results of a investigator-initiated study she conducted in Los Angeles, with support from Fujisawa, to evaluate the safety and efficacy of Protopic in the treatment of vitiligo. The results in the study group were very encouraging.Many health insurance companies in the U.S. will not yet pay for Protopic for the treatment of vitiligo, because it is only federally approved for eczema. Patients in other countries, such as Canada, have reported better success in getting their health insurance to cover Protopic. Hopefully this will change soon. The product can be quite expensive, costing some patients up to $60 for a 30g tube, to $120 for a 60g tube. Depending on the extent of a person's vitiligo, the 60g tube can last from one to three months. It should be remembered that while Protopic is showing good results for many, it can still take from three to six months to see initial results, and that 100% repigmentation is still difficult, especially on some parts of the body, such as the hands. Treatment can take up to two years or longer. Even once an area is repigmented, it may still be subject to future relapse. Some patients have reported long-lasting results, while others have seen relapse. For this reason, vigilance and perhaps a maintenance regimen are recommended. What are Elidel, Aldara and Imiquimod? Like Protopic, these products are all forms of immunomodulators or immune response modifiers. Elidel is a product called Pimecrolimus, that is very similar to Protopic, but comes in a cream form. Many patients prefer the cream form, as it is less greasy. Some patients are combining therapies, using the cream-based Elidel in the morning, and the ointment-based Protopic at night. While some patients who have tried both products feel Protopic ointment works slightly better, many Elidel cream users report that Elidel works at least as well as Protopic. Aldara (Imiquimod) is a cream which has shown some positive results for those with vitiligo. It is also an immune response modifier. What is Pseudocatalase (Pcat)? Pseudocatalase, also called Pcat for short, is also a relatively new treatment option for vitiligo. The cream, which is applied twice a day, is designed to reduce epidermal hydrogen peroxide in vitiliginous skin, found to be in higher levels in those with vitiligo. It also makes the dermal environment healthier for melanocytes and keratinocytes, resulting in increased functioning of the melanocytes in the involved epidermis. Pseudocatalase is usually done in combination with narrow band UVB light therapy. Pseudocatalase does not make the skin more sun sensitive, and it does not matter when it is applied in relation to the UVB therapy. What is Ratokderm?Ratokderm is a laser technology for treating vitiligo, only available in Milan, Italy. Many people find their website accidentally, because, ironically, the Italian Ratokderm company happens to own the domain, "vitiligo.com" which nearly every person with vitiligo has visited just to see where it leads.Ratokderm basically uses a laser beam of Narrow Band UVB light. The company says that this technology allows patients to completely give up the use of drugs in treating their condition, allow a point by point treatment of their vitiligo with the laser, and, avoid the more dangerous bands of UV light. This treatment is virtually identical to the B-Clear laser available at Dr. Al Rustom's Skin and Laser Clinic. What is an Excimer Laser? As described above, an excimer laser is basically a highly concentrated beam of UV light, directed at vitiligo spots or patches. What is a B-Clear Laser? It is similar to Excimer laser. This treatment has the advantage of requiring no medications, and with virtually no side effects. Recently approved by the FDA, the treatment is more expensive than other methods, and often not covered by health insurance, however many dermatologists are offering B-Clear laser treatment in their offices.This treatment is available at Dr. Al Rustom's Skin and Laser Clinic What is V-Tar? V-Tar is a 30% Standardized water soluble coal tar product which also contains natural anti-inflammatory agents, skin conditioners, and antioxidants. V-Tar has been used successfully in many patients with vitiligo and other hypopigmentatry disorders. Its once weekly application is convenient for many patients. V-Tar is available only with a physician's prescription. What is skin grafting?In an autologous (use of a person’s own tissues) skin graft, the doctor removes skin from one area of a patient's body and attaches it to another area. This type of skin grafting is sometimes used for patients with small patches of vitiligo. The doctor removes sections of the normal, pigmented skin (donor sites) and places them on the depigmented areas (recipient sites). There are several possible complications of autologous skin grafting. Infections may occur at the donor or recipient sites. The recipient and donor sites may develop scarring or an uneven appearance, or may fail to repigment at all. Treatment with grafting takes time and is costly, but does work for some people. What is autologous melanocyte transplant?In this procedure, the doctor takes a sample of the patient's normally pigmented skin and places it in a laboratory dish containing a special cell culture solution to grow melanocytes. When the melanocytes in the culture solution have multiplied, the doctor transplants them to the patient's depigmented skin patches. A fairly new technology, this procedure is still in the experimental stages. What is Melagenina?Melagenina (now Melagenina Plus) was developed in Cuba about 20 years ago, using human placenta tissue. They may now use other animal placental tissues. The company in Cuba that markets it claims high success rates, but these cannot be substantiated, and many people have claimed no results at all. The product instructions indicate that application of the cream should be several times a day, followed by 15 minutes of natural sunlight. In 1998, Melagenina Plus was announced, which unlike the previous treatment requires only once daily application and does not require exposure to the sun. The company claims that the calcium chloride contained in the product strengthens the skin’s pigmentation. The product is not available in the U.S. or Canada, and is not approved by the FDA for use on vitiligo. The medicine can be obtained in Cuba, and also at Melagenina sponsored centers in Mexico, Brazil, Bolivia, Peru, Uruguay, El Salvador, Nigeria, Russia and Ukraine. What is depigmentation?Depigmentation involves fading the rest of the skin on the body to match the already white areas. For people who have vitiligo on more than 50 percent of their body, depigmentation may be the best treatment option. Patients apply the drug monobenzylether of hydroquinone (monobenzone or Benoquin) twice a day to pigmented areas until they match the already depigmented areas. Patients must avoid direct skin-to-skin contact with other people for at least 2 hours after applying the drug. The major side effect of depigmentation therapy is inflammation (redness and swelling) of the skin. Patients may experience itching or dry skin. Depigmentation is generally permanent and cannot be reversed. In addition, a person who undergoes depigmentation will always be unusually sensitive to sunlight. Different types of lasers are used also to cause depigmentation. For more information call Dr. Al Rustom's Skin and Laser Clinic +971-4-349-8800 Are there parts of the body that are harder to treat than others?For some reason, certain parts of the body, including the hands, feet, and some areas where the hair has turned white, do seem to be harder to treat than other areas. However, many of today's brightest experts in the treatment of vitiligo, maintain that ANY vitiligo spot can be repigmented, and even hair repigmented, with enough work and dedication. Can tanning beds (solariums) be used in place of PUVA or Narrow Band UVB?Most experts suggest that tanning beds (also known as tanning booths and solariums) not be used in place of PUVA lamps or Narrow Band UVB lamps or even natural sunlight. The problem with tanning beds is that the lamps in these devices usually emit a much stronger, broader spectrum of UV rays, and may not be as safe or effective for people treating vitiligo, and may result in severe burning or other side effects. You should consult your dermatologist before attempting any type of light or UV therapy. Can the genitals be treated?Obviously a sensitive subject, but many people with vitiligo have questions about. The reality is, a substantial number of people with vitiligo (estimated at 25 to 40 percent) do experience at least some (if not extensive) vitiligo on their genitals. For many people, this can be a serious effect on their own esteem, and in their social and sexual lives.Yes, genitals *can* be treated and are often very receptive to treatment. Traditional therapies, such as steroid creams, and PUVA, have been used to treat the genitals, both male and female. Limited use of steroid creams has brought repigmentation to many. Topical psoralen has also been used. Pseudocatalase cream and Narrow Band UVB is generally safe to use, and B-Clear laser is also used on the genitals. Protopic immunomodulator has also been prescribed by doctors for use on the genitals. With any ointment or cream being applied to the genitals, care should be taken around the urethra and vaginal openings to avoid risk of irritation or infection. Is it safe to use all treatments on the face and around the eyes?Certainly with ointments and creams, you want to discuss this with your doctor. Generally, most are quite safe, but it is wise to avoid getting anything in the eye to begin with. The greatest risk to the eyes from vitiligo treatment is UV exposure. Of course, many people keep their eyes covered with goggles while getting UV therapy. But what if you have areas to treat around your eyes (peri-occular)? Most dermatologists will allow you to remove the goggles and keep your eyes gently shut for some period of time during each treatment. You should discuss this with your dermatologist prior to any treatment. Once a spot repigments, is it permanent? Will I have to treat my vitiligo forever?Right now, the products available for treating vitiligo, seem to be addressing the symptom of vitiligo (the spots), and not the underlying cause, which we still don't completely understand. Once a spot has been repigmented, some people report that the new pigment lasts a long time, and many do not report any relapse of that spot. Some patients feel that if you can get a spot to "close," meaning, to be repigemnted completely to the naked eye, that it will have a better chance of staying repigmented. Still, a significant number of people report that after repigmenting, and then stopping treatment, that over time, from a few months to a decade or longer, the areas start to lose pigment again. The underlying cause of vitiligo is still not well understood. But whatever the cause, treating the spots is treating a symptom. Therefore, watching for new areas of vitiligo is important, so that you can begin treatment as soon as possible. Many dermatologists recommend various forms of maintenance of new pigment. Maintenance could include occasional light therapy treatments, or other options. This is also something important to consider. As research advances, we may one day soon be able to treat the CAUSE of our vitiligo, rather than just the symptoms. Why bother treating at all if permanence of repigmentation is not guaranteed?This is a common thought for those with vitiligo. Why should we attempt to treat at all, and spend the money, if the permanence of our new pigment is not guaranteed? There are several reasons. First, for many people, simply making some attempt to repigment, in of itself, is a powerful emotional tool in dealing with their vitiligo. Second, it is clear that the larger an area of vitiligo, or the more extensive vitiligo is on a person, the harder it may be, and the longer it may take to repigment. Better treatments for vitiligo are almost sure to come eventually. There is more research and investigation about vitiligo taking place now that ever before in history. Clearly, if within the next three, five or even ten years, something revolutionary is developed in the field of vitiligo, the more pigment a person has at that point, the better. What if my health insurance won't cover my vitiligo treatments?Many health insurance companies will initially reject treatments for vitiligo, or will approve only some, because they claim the condition is only cosmetic. Of course we know that's not true. The key with insurance companies, is to be persistent until you achieve success. Until health insurance companies universally begin accepting vitiligo as a legitimate medical condition that affects psychological and physical well-being, in addition to susceptibility to sunburn, this is how it must be done.The first step, is to have your dermatologist write a letter to the insurance company, explaining vitiligo, explaining the psycho-social effect, and the physical risks of vitiligo, such as serious sunburn. This is often sufficient, but it will be more convincing if you follow up with a letter of your own to the health insurance approval dept. NATURAL & ALTERNATIVE THERAPIES Are there really natural/alternative remedies for treating vitiligo? Absolutely; some examples you can find by searching the internet are homeopathy and supplementation. What is a free radical? What is an anti-oxidant?There are a number of mechanisms for free radical production, including pollutant chemicals and heavy metals. A free radical is an atom or group of atoms that has at least one unpaired electron and is therefore unstable and highly reactive. In animal tissues, free radicals can damage cells and are believed to accelerate the progression of cancer, cardiovascular disease, and other disorders.Antioxidants are substances, such as vitamin E, vitamin C, or beta carotene, thought to protect body cells from the damaging effects of oxidation, and are believed to be a powerful defense against free radicals. I have heard about healing centers at the Dead Sea. Does this therapy work?The dead sea’s water is extremely rich in salts and minerals. There are several clinics there which provide dermatological therapy, and some people do claim it has been beneficial for their vitiligo. What is homeopathy?Homeopathy is a natural method which seeks to repel imbalance out of the body and allow the body to heal. It has distinct differences from conventional (also called allopathic) medicine. Homeopathy works with the body's natural defenses and doesn't seek to merely suppress symptoms but rather stimulates the body's ability to heal with very small amounts of natural substances. What is holistic medicine?Holistic medicine emphasizes the need to look at the whole person, including analysis of physical, nutritional, environmental, emotional, social, spiritual and lifestyle values. It encompasses all stated modalities of diagnosis and treatment including drugs and surgery if no safe alternative exists. Holistic medicine focuses on education and responsibility for personal efforts to achieve balance and well being. What is acupuncture?A procedure used in or adapted from Chinese medical practice in which specific body areas are pierced with very fine needles for therapeutic purposes or to relieve pain or produce regional anesthesia. The needless are also believed to influence physiological functioning of the body, including the function of the skin and the immune system. What vitamin therapies are recommended for people with vitiligo?Although there is no specific recommended system, many members have posted their vitamin regimens and testimony’s under the member registries. By browsing through these you will get a good idea what most people are using and what seems to be working for them. Some studies describe the use of vitamin supplements in the treatment of vitiligo. Folic acid and/or vitamin B12 and vitamin C levels have been found to be low in many of the people with vitiligo studied. Supplementation with large amounts of folic acid (1–10 mg per day), along with vitamin C (1 gram per day) and intramuscular vitamin B12 injections (1,000 mcg every two weeks), did produce repigmentation in some people. In other studies of people with vitiligo, oral supplementation with folic acid (10 mg per day) and vitamin B12 (2,000 mcg per day), combined with sun exposure, resulted in some repigmentation after three to six months in a large number of cases. What about Vitamin D/Dovonex/Calcipotriol??When used topically in combination with sun exposure, some patients claim that a pharmaceutical form of vitamin D, called calcipotriol (Dovonex), may be effective in stimulating repigmentation in some patients with vitiligo. Calcipotriol is a prescription medication to be used only under the supervision of a doctor. It is not known if vitamin D as a dietary supplement has any effect on vitiligo. It should be noted that some experts have indicated cases where Calcipotriol caused an exacerbation of vitiligo. Do medical doctors recommend vitamin regimens?Most medical doctors training/curriculums do not include vitamins/supplements or alternative health approaches. Some curriculums do include a bit of knowledge on supplementation but it is usually a very small amount of training. However, among medical doctors who specialize in vitiligo, there is a strong trend to include vitamin supplements as part of the treatment of the vitiligo condition. I have read about a miracle herbal cure that claims results in a few weeks. Should I try it?Before trying any treatment, either herbal or traditional, it would be wise to check for yourself about any side effects the herb or treatment may cause. In addition to this seek professional advice from those trained in the herbal areas and ask lots of questions. RESEARCH What research is being done on vitiligo? There is probably more research being conducted today in the area of vitiligo, than ever before. From the genetic basis of autoimmune disorders, to the structure of the skin, and understanding the immune system, studies are now being conducted which may yield more information about the nature and causes of vitiligo, and how to treat it more effectively. With the mapping of the human genome, isolating similar genetic abnormalities in thousands of people with vitiligo has produced some important information about enzyme operations in our skin. Some researchers and vitiligo experts believe that within 5 years, we will have a far more thorough understanding of the mechanics of vitiligo, and a more solid treatment for everyone in that time period. Are there foundations that focus on vitiligo? Yes! The American Vitiligo Research Foundation (AVRF) is an organization that works to improve public awareness about vitiligo, through dedicated work, education and counseling. AVRF holds frequent seminars and fundraising events. The AVRF supports finding a treatment and cure to vitiligo through alternatives to animal testing. Will they ever find a treatment or a cure that works well for everyone? Because people are different, and because there are thought to be many different causes of vitiligo, different treatments work better for different people. It is important to be willing to try new therapies if others are not working. Just because one treatment did not work for you, does not mean something else won't. As biotechnology improves, and as understanding of the human genome advances, and with ever more powerful computers to assist researchers, it seems almost certain that treatment therapies will continue to improve in convenience and effectiveness. COSMETICS AND OTHER PRODUCTS Are there cosmetics available to cover vitiligo spots?Yes, there are many products out there to provide excellent camouflage of vitiligo spots. Some people prefer traditional waterproof makeup, designed to match every skin tone, and which can be applied to the spots only. Though they are waterproof, they are not always friction proof, and some men will not wear them. These types of covers are available in every skin tone, from very fair to dark black.Other people prefer stains (or sunless tanners as they are often called) which are both waterproof and friction proof and which last for several days. Sunless tanner products should be applied ONLY to the white areas, as they will darken all skin relatively. Thus applying them all over a body part, may result in the spots still being visible. There is some controversy about the safety of sunless tanners, in particular those that contain the chemical Dihydroxy Acetone (DHA) which blocks UV rays from reaching the skin, and which may not be healthy for the skin environment. Nevertheless, many people use sunless tanners (at least on occasion), and find them a source of great relief. Is it safe for someone with vitiligo to use hair dyes or bleaches? Experts recommend that if you have vitiligo, you should avoid hair colourings and bleaches. Some people with vitiligo are very susceptible to these products causing onset or further spreading of their vitiligo, because they contain phenol derivatives, which can exacerbate vitiligo. Temporary hair colourings however, which do not contain phenols or phenol derivatives, are generally accepted as safe. When in doubt, you should consult with your physician. Should I use sunscreen? It is always a good idea for people with vitiligo to use sunscreen, whenever they will be spending more than a few minutes in the sun. Besides the need to protect the skin from severe sunburn, sunscreen will keep non-vitiligo affected areas from tanning, thus helping you to avoid the contrast that results between tanned areas, and vitiligo spots. However, there are an increasing number of medical doctors who believe that SOME sun exposure, usually 5 to 15 minutes of sun exposure a few times a week, may be useful in healing vitiligo. If you are interested in this addition to your treatment, you should consult with your dermatologist to see if it is right for you. EMOTIONAL, SOCIAL AND RELATIONSHIP ISSUES How do I deal with the emotional issues of vitiligo? The change in appearance caused by vitiligo can affect a person's emotional and psychological well-being and may create difficulty in professional and social situations. People with vitiligo can experience emotional stress, particularly if vitiligo develops on visible areas of the body, such as the face, hands, arms, feet, or on the genitals. Adolescents, who are often particularly concerned about their appearance, can be devastated by widespread vitiligo. Some people who have vitiligo feel embarrassed, ashamed, depressed, or worried about how others will react.Several strategies can help a person cope with vitiligo. First, it is important to find a doctor who is knowledgeable about vitiligo and takes the disorder seriously. The doctor should also be a good listener and be able to provide emotional support. Patients need to let their doctor know if they are feeling depressed because doctors and other mental health professionals can help people deal with depression. Patients should also learn as much as possible about the disorder and treatment choices so that they can participate in making important decisions about medical care.Talking with other people who have vitiligo can help a person cope.As discussed above, many people with vitiligo have found that cosmetics that cover the white patches improve their appearance and help them feel better about themselves. A person may need to experiment with several brands of concealing cosmetics before finding the product that works best.Finally, counseling with a licensed therapist can help you examine your fears, improve your self esteem, and find ways to deal with the emotional and social issues that everyone with vitiligo faces. This type of counseling is covered by many health insurance plans. People stare at my spots. I am embarrassed by my vitiligo. Is there anything I can do? First, understand that to most people, vitiligo is unusual, and perhaps a bit unsettling. Though many Americans know about vitiligo as a result of singer Michael Jackson sharing his condition many years ago, few people know what it is called, or exactly what it looks like. Do not be afraid to tell people what it is, especially children. Kids are pretty smart these days, and everyone can understand if you explain that vitiligo is a condition in which the immune system sees the pigment cells as foreign bodies, and attacks them (our best explanation). Explain that it does not hurt, and that it is a genetic condition, and is not contagious.Finally, try to maintain a normal lifestyle. If you enjoy hiking or sports, or swimming, then you should continue to engage in these activities (remembering sunscreen where appropriate). Don't avoid social situations and parties - these are good for your psychological well-being. In the old days, many people thought vitiligo was the result of burns or chemical spills. But people are becoming more aware about vitiligo, and it seems that almost everyone knows someone with the condition. How do I explain vitiligo to people? Should I even bother?We suggest that you be honest and open, and explain to people that vitiligo is a genetic condition, in which the body's immune system sees pigment cells as foreign bodies, and attacks them. Explain that it is a rather common condition, that it does not hurt or itch, and that it is not contagious. Finally, explain to them that treatment technology for the condition is improving, and that genetic advances may one day solve the condition. No matter who they are, everyone can identify with genetic ailments, such as multiple sclerosis, Parkinson’s, and other conditions. When they realize that this is a condition just like every other miserable condition humans inherit, they are less likely to be afraid of it. I have a child with vitiligo. What should I do? Children usually cope best with vitiligo when their parent(s) is/are prepared to talk about the condition as openly and truthfully as possible. To pretend you haven't noticed something so obvious may make it difficult for your child to talk to you about it. Because this is often so difficult for parents to cope with, especially as relates to other children, it is important to talk with teachers, and counselors, and to be conscious if your child is being teased or bullied. Support your child, and encourage them to get involve with activities and hobbies. Teach them that it is OK to be different, and that it doesn't make them any less important. A wonderful book for children to read, is Lori Mitchell's "Different Just Like Me" which teaches children that there are many different people in the world, and that they really are very much alike, despite their obvious differences. I am afraid I might lose my job because of my vitiligo. What should I do? Under various laws, most people in many countries are protected from discrimination in their work or from being fired based on medical conditions or illness. If you feel that you have been discriminated against because of your vitiligo, then you should consult an attorney specializing in labor and employment law. I'm afraid my spouse or significant other won't be attracted to me because of my vitiligo. What should I do? Relationship issues are without question one of the most important social problems that come up with vitiligo. People with vitiligo are frequently concerned that they will no longer be attractive to their significant others, partners or spouses. What we find to be the case most often, is that the partners of people with vitiligo are often times not terribly concerned about the vitiligo, and often say that it does not bother them. More often, we find that any relationship problems that arise are usually created by the vitiligo-affected partner. So learn to communicate with your partner or spouse, express your concerns and fears, and LISTEN. Another possibility is to make yourself attractive in other ways. Pay attention to your hair, work out, have your teeth fixed. Skin does not always have to be the focal point. Counseling with a licensed therapist concerning your relationship issues (either alone or with your partner or spouse) can also be invaluable here. I feel self-conscious and uncomfortable at places like the beach or swimming pools. What can I do? Don't avoid the beach or swimming pools just because of your vitiligo. Do not allow vitiligo to interfere with the joy of living. From a physical aspect, it may make sense to go swimming and to the beach in the later afternoons, when the sun is not as strong. If it makes you feel better, wear stain or waterproof makeup cover. And if people ask about the vitiligo, you should explain it to them just as indicated above. I feel self-conscious about my body in romantic or sexual situations. What should I do? This is a particularly common feeling. Because so many men and women with vitiligo have genitals which are affected by the condition, as well as other erogenous areas of the body, this fear is understandable. Fortunately, genitals respond well in many people to various types of treatment, so you might seriously consider seeking aggressive treatment. We have found that most spouses and sexual partners are not terribly concerned about vitiligo, especially when they understand what it is. Your own self doubt and self-consciousness may create more problems for you and your partner than the actual vitiligo. Learn to overcome that. How do I find a good counselor or psychotherapist to help me with the emotional issues? Physicians and friends and family are all good sources for referral to a therapist. As with all professionals, personal referrals are often the most valuable. Second to that, you should try to find a therapist who has experience in counseling people with medical conditions or conditions which affect their appearance. These types of therapists may be able to explore with you ways to deal with vitiligo, both inwardly and socially, and can work with you to maintain your self-esteem and pride. Taken from: http://www.skin-and-laser.com/vitiligo_faq.htm

April's Vitiligo .. Just for Kids

April is a very special girl who has vitiligo. April's space was created by her, as a place for children all over the world to go and read about other kids with vitiligo, and how they deal with it.

Hi, My name is April. I have had vitiligo since I was 8 months old. I wouldn't know what it was like not to have it. I like my vitiligo, most of the time, because it makes me unique. Sometimes I see pictures in my spots. My right hand is almost all white but the dark spot that's left looks like a person with a big eye and I have what looks like Hawaii on my left hand. I have a picture of an old granny on my right leg and superman on my tummy. The rest of my spots just look like clouds. When I was in Kindergarten I had what looked like a snowman on my lower back. (Right over my backbones) My mom took out her paints and painted on a top hat, a muffler, carrot nose, coal eyes and sticks for arms. It was so cool. I only showed it to my closest friends at school. They liked it.

What happens at the Dermatologist? The Dermatologist won't hurt you. Most are very nice. I should know, I have been to a lot of them. Most of the time all they do is look at your vitiligo to see if they can help you. He or she might say you have to put cream on. Don't worry; it's not the worst thing in the world. In addition to the cream you might need to be out in the sun for a while or you might need to get UVB light treatment. I wasn't sure I would like going in the light box. It was big and had lights all around. It sort of looked like a closet with long light bulbs covering each wall, and the top was open. I went in my underwear and goggles to protect my eyes. I had to close the door. My mom was just outside and she talked to me while I was inside. I was only in it for about a minute. The light goes on and then turns off. When it's off I get to come out and get dressed again. It's really private and no one else sees you. After the first time I realized it was no big deal. Each time you go you stay in the light box for longer. I think I worked up to about 3 minutes. There's only two things, so far that were uncomfortable. You might need to have blood taken. I don't really like that part but I know they have to do it sometimes. It only takes about half a minute and my mom bought me an Icee after both times I had it done. They were checking something called a thyroid and checking to see if my Folic acid and B 12 levels were ok. They were both OK. If your Dermatologist isn't sure that you have vitiligo you may need to have a biopsy. They would take a very small, thin piece of skin, smaller than a pencil eraser is around, and about the depth of a piece of paper. Then they would send it to the lab. I had it taken from the back of my upper thigh. The doctor numbed the area first, so I wouldn't feel it, and then took a quick punch of skin with something that looked sort of like a stapler. I had to have a couple stitches but I was okay. I didn't even cry. I got to show off my first two stitches to my girlfriends at school. But you probably won't even need this. What to do about Teasing? I have been called all sorts of names. Maybe you have heard these too. Cow, Dog, thought you rolled in mud, why did you paint yourself, chocolate and vanilla. (I actually thought that if I were chocolate and vanilla it wouldn't be so bad) I thought they were mean, but I usually just say I have two colors of skin and I was born this way If they are trying to be mean, they probably won't care what you say, but if they just don't understand, it might help them. Most of the time, if kids know more about it they will leave you alone. If anyone makes fun of you they must have something wrong with them. They are trying to make themselves look good by putting other people down. Sometimes people just don't understand what it is, so you can explain it to them, if you want. I feel like if I can explain it, then maybe I am educating them and if they see someone else with vitiligo they won't have to ask about it again. Also maybe they have a family member that has white spots that may have never known what it was. One idea you can try is to make up cards. (Scroll down to PROJECTS and you can download your own cards) I got tired of explaining so I came up with the idea of handing out cards. They have the Vitiligo Support International website on them and I put "I'm just like you, I just have two colors of skin" plus some of the other stuff about not being contagious. I went to Kinko's with my mom and picked out bright colored paper and I printed them and cut them all out. At home I put colorful stickers on the back to make them more "fun". My mom keeps them in her purse now and if someone is staring or asks about my vitiligo, I can give them a card, if I feel like it. An example of what happened to me At school two boys were making fun of me and my friend. My friend breathes loud because of her asthma so they said something about that. They said my skin was ugly. We told them to stop but they wouldn't, so we told a teacher. The teacher told them to apologize and if it happened again they would be suspended. It hasn't happened again. If someone makes fun of you, you can just walk away. Or you could tell them you just have two colors of skin. If they keep bothering you, after you tell them to stop, you can ask you teacher, parent, school nurse, principle or older brother or sister for help. FEELINGS I feel different things at different times. Most of the time I'm happy but it's okay to be sad sometimes too. If you're sad, I know how you feel. I feel sad when people call me names. I feel hurt by what they say. Even though I realize they just don't understand, or they're just trying to make themselves look better, it still hurts sometimes. Sometimes I get mad that they could be so stupid and say such dumb things. I get frustrated when my mom tells me I have to put the cream on...AGAIN Sometimes I just don't want to do it. I feel like I'm just fine the way I am, why should I have to put on the cream. I know, mom says if I get my color back I might be safer in the sun, but I still don't like putting it on. I feel HAPPY when I get to travel and see my friends that have vitiligo. I went to the First Vitiligo Convention in March of 2000. It was in San Francisco. I met other kids and adults that had skin that looked like mine. One boy came all the way from Hawaii! Some had it all over, like me, and some just had a spot here and there. I really enjoyed talking with everyone. I stayed up until midnight! Over the summer we went to Europe. My mom talks with other parents on Vitiligo Support.org. She had been talking to another mom in England. We got to meet her son who was my age. His family was really cool. I had fun playing with him and his little sister. He just had one small spot on his lip. When I was really little I think I thought I was the only one with skin like this. (I felt alone) My mom discovered through the Internet that there are people from all over the world with vitiligo. We put up a map of the world on our wall and we put pins in the places that everyone was from. It made me feel better to know there were a lot of others, all over the world that looked like me. There was even a man from Abu Dhabi, by Saudi Arabia. He told me he walked by alligators to get to work! PROJECTS: PUT UP A MAPAsk your parents if you can put up a map of the world and track where everyone is from. I mounted my map on foam core board so I could push the pins in and not go through the wall. I put a little paper flag on each pin with the persons name on it, and then stuck it in wherever they lived. You could have different colored flags for boys and girls. You will need some help from a parent. Have them get on one of the Vitiligo Websites. Vitiligo Support is my favorite but there are others. Then have your parent post a message and ask where everyone is from. Tell the members on the list what you are doing with the map and flags. LEARN A NEW SONGHave you heard a song called True Colors, by Cindy Lauper and Phil Collins? I thought they were singing Two Colors when I first heard it. I said Hey, Mom; they should have this as the Vitiligo theme song because I always say I just have two colors of skin. Here are the words to True Colors but we changed them to "TWO COLORS".You with the sad eyes Don't be discouragedOh, I realize It's hard to take courage In a world full of people You can lose sight of it all And the darkness inside you Can make you feel so small Chorus: But I see your TWO COLORS Shining through I see your TWO COLORS And that's why I love you So don't be afraid to let them show Your TWO COLORS TWO COLORS are beautifulLike a rainbowShow me a smile thenDon't be unhappy, can't remember When I last saw you laughing If this world makes you crazyAnd you've taken all you can bear You call me up Because you know I'll be there And I'll see your TWO COLORS... Chorus When my mom and I were looking for the lyrics to the song True Colors we found this interview. We thought you might like to read a few of their answers. Questions for Cindy Lauper and Phil Collins about True Colors Q.Why does he speak of true colors?A."True" means natural, not artificial, not just for show. The friend seems to hide himself behind fake colors; he wants to make believe that he is someone else. In the long run such a disguise makes you ill. Q. Is it good if someone accepts your True Colors?A. Yes, I think so. If someone urges you to change yourself, it implies that he/she does not accept and love you just the way you are. If somebody accepts all your weak points, it means that you don't have to disguise yourself in front of him/her, that you can be yourself. CARDS You can print out your own cards. Try to print them on colorful paper and you can color or you can put stickers on the back of each card to make them more fun. PLAY ACTING Practice play-acting what to say if someone asks about your vitiligo with your mom or your sister, or dad, or whoever you feel comfortable with. Sometimes I pretend my mom has vitiligo and I ask her about it. Sometimes we pretend like someone just wants to know more about it so I say it's just the loss of color or pigment in my skin. I just have two colors of skin. You can't catch anything. Would you like to feel it? It feels the same as your skin If someone is trying to tease me, I have a different way to respond. I can walk away or I can ask them to stop. I usually try not to show that what they are saying bothers me. I try to remember that if someone is making fun of my skin, it's not me that's the one with the problem. I also know that I don't need to get back at them. We usually end up joking around and laughing, so don't take it too seriously. Have fun with it. PUPPETS You could make sock puppets to talk back and forth about vitiligo, or you can have them talk about whatever you want. You will need: 1 sock per puppet (make sure you ask your parent for an old sock) Buttons or googly eyes for eyes Felt or pompom for the nose Felt for the tongueYarn for the hair Markers to draw on the vitiligo Material for the clothes Glue or needle and thread to put it all together. Use your markers to color on the vitiligo spots. You can be creative and use any colors you like. Sew or glue on the eyes and the nose. Cut the felt to look like a tongue (a long U shape) then hold your sock on your hand to find where the mouth will go, then glue the tongue in place. Sew or glue the yarn on for hair. For the clothes just use a rectangle of material and wrap it around to look like a shirt or dress. Don't make it too tight or you won't be able to get it on and off your hand. You can add lace and buttons for girls or add a collar for boys. If you don't have some of this stuff you can just draw it all on. MY DISCOVERIES I have made a few discoveries while living with vitiligo. One is that I'm not the only one in the world that is different. Every kid in my class has something that makes them different. I think I used to wonder why I was the only one that had to be different, but now, when I really take a look at everyone around me, I can see that no one is perfect. The second thing I figured out was that, so far, there's nothing I can do about my vitiligo. The only choice I have is how I deal with it. I can be really angry and bothered by it or I can choose to make the best of it and accept that this is the way it is for now. I'm going to have vitiligo whether I'm happy about it or not. Why not choose to be Ok with it and focus on the good stuff in my life? If some jerk teases me, I'm not going to let him ruin my day. Some person I don't even know cannot decide what I think of myself. I have lots of friends and family members that love me just the way I am, and they count MUCH more than some rude goof ball that doesn't even know what he's talking about. Another discovery is that I am WAY more than just my vitiligo. I'm talking about it a lot at this site because that's what everyone is here for, but normally I don't really talk about it or think about it all day. I have lots of other things to think about. Some of them include.... ARTI like to draw and paint and do crafts. MUSICI play the clarinet. I love music and want to be a singer some day. I sing around the house all the time. I have a little piano keyboard that I take everywhere and sometimes I make up songs. The Backstreet Boys, Brittany Spears, Santana, Madonna, B.B. King, Natalie Cole, Seal, Celine Dion, Chris Isaac, Buckwheat Zydeco, Christina Aguilera, and Ricky Martin are just a few of my favorites. FRIENDSI have friends over a lot and sometimes we make up games to play. Sometimes we put on plays or we do chalk on our driveway. A lot of my friends are in my Girl Scout troop. We do all kinds of fun stuff like camping, field trips, crafts and camp outs. In the summer I go swimming in the pool with my friends almost every day. I like to swim with my dad too. BEACH We live by the beach and sometimes I like to go boogie boarding. We usually go towards the end of the day so I don't have to put so much sun block on. The sun is not so bright and parking is better. Sometimes we bring food and have dinner there and watch the sun go down. READINGI love to read. Some of my favorite books are: Harry Potter, By J.K. Rowling (All 5) Holes, by Louise Schar Good Burger to Go By Steve HollandDifferent Just Like Me, by Lori Mitchell (My Mom!) I like all the I SPY books. The ones where you have to find the objects in the pictures.

My favorite magazines are: Disney, Nickelodeon and National Geographic WORLD magazine. MY CATMy cat is the cutest in the world. Her name is Allove. I found her in the street at my uncle's house. She was dirty and covered in fleas but she jumped up into my arms and purred. She was so sweet. Since she didn't have an owner we took her home and cleaned her up. She was really loving so that's how she got her name.

Taken from: http://www.vitiligosupport.org/justforkids.cfm

Sunlight & Vitiligo

Sunlight can be used if the prescription light sources are not available. Some doctors allow patients to combine sunlight with Protopic/Elidel or topical steroids, while others do not. PUVA-Sol is a form of PUVA with an oral or topical psoralen which is used with sunlight rather than artificial UVA light. Moderation must be used, however, as burning the skin can damage it and possibly cause the vitiligo to spread. When using sun as a therapy, it is important to start slowly and gradually build up time. A pink color (not red) in the vitiligo areas a few hours after sun exposure is the desired effect. As the skin becomes accustomed to the sun, it can take longer to achieve pinkness. Like any other treatment, sunlight would need to be used at a therapeutic level consistently for it to be beneficial. Safety - It should be noted that NB-UVB is safer for the skin than sunlight. Sunlight contains the UVA rays which penetrate the skin more deeply than the UVB rays. Recently, scientists have learned that UVA rays while not contributing to sunburns, damage deeper layers of the skin and probably play an important role in wrinkling, spotting, lost elasticity and the dangerous skin cancer melanoma. UVB are the burning rays. By using Narrow Band-UVB you can achieve a therapeutic level of treatment in just a few minutes as opposed to the longer times required by sunlight, reducing your overall exposure to these potentially damaging rays. There is growing evidence that vitamin D levels are often low in those with autoimmune disease; whether this is a cause of the disease or a result of it is as yet unknown. Sunlight in moderation (15 minutes a day 3 days a week) can help build up the vitamin D level and support the immune system, while also stimulating pigment cells. Vitamin D supplements can also be used. Taken from: http://www.vitiligosupport.org/treatments_and_research/sunlight.cfm

THE BIOSKIN EVOLUTION® THERAPY

The latest scientific knowledge on the vitiligo consider it as a dermatosis due to multiple factors and that it can have different aspects according to the triggering cause. In fact, this is not simply a disorder of pure cosmetic interest, but would result from little defects (probably genetic ones) that can cause thyroid unbalance and to other organs of autoimmune nature. In order to know the indicative evaluation of the effectiveness of the BIOSKIN EVOLUTION® therapy in your specific case, it is necessary to fill out the questionnaire following which you will have an answer by e-mail. Besides, in order to be able to understand if these problems subsist for the individual patient, it is necessary to carry out some blood tests to evaluate the possible involvement of the above mentioned organs. Once these examinations are carried out, we will have a global vision of the patient and would be able then to begin a specific and personalized therapy. WHAT IS THE BIOSKIN EVOLUTION® THERAPY.In order to understand the BIOSKIN EVOLUTION® therapy it is necessary to have some basic knowledge in dermatology. The melanocytes are some cells located in the deeper layer of the epidermis (that it is not other than the most superficial thin veil of our skin and it has an average thickness of 0,4 mm) and that during the pathological process leading to the vitiligo are "inactivated" or "killed". The melanocytes being the cells, which contain (the main colour of the skin), their absence is revealed by the lack of colour in the affected zone: this is the vitiligo. Yet the epidermis is not the only zone of the skin provided with melanocytes. In fact, the colour of the hair and of the hairs is precisely due to the melanocytes being situated close to the hair bulb (in the zone known as perifollicular) placed much more in depth compared to the epidermis. These deep melanocytes are very rarely interested by the process that causes the vitiligo and, if opportunely stimulated, they can multiply themselves, climb back in the epidermis and give rise to new pigmentation, and therefore to the cure of the spots. This phenomenon, that sometimes is spontaneous or caused simply by the exposure to the sun, shows itself through the appearance of circular points of pigmentation in the zones made achromic (that is without colour) by the vitiligo. In the illustration 1 (a and b) it may be noticed how the skin of the hands of a subject before the therapy (a) and during (b) the treatment with BIOSKIN EVOLUTION® is giving rise to these "tokens" of pigmentation that will increase of diameter and they will unite themselves, to give finally to the skin its normal pigmentation. The medical research and today's technologies have allowed to determine the wavelength (among all the ones of the solar spectrum) that stimulates more effectively the melanocytes to duplicate and to produce melanin (311 nm). BIOSKIN EVOLUTION® allows us to be able to convey this wavelength exclusively on the vitiligo spot and in depth towards the perifollicular melanocytes without causing the damages due to all the other solar radiation of which mainly infrared and ultraviolet rays A. THE NEW THERAPY FOR THE CARE OF THE VITILIGO:BIOSKIN EVOLUTION® THE LATEST COLD-LIGHT GENERATION MICROPHOTOTHERAPYA new and sophisticated emitting equipment of the ultraviolet B rays to 311 [nm] can eliminate the cutaneous dyschromias caused by the vitiligo. It is about THE LATEST GENERATION MICROPHOTOTHERAPY BIOSKIN EVOLUTION® performed with an innovative equipment, which emits in a specific and selective way a bundle of ultraviolet light of type B able to stimulate the dormant melanocytes cells gradually, thus allowing to look after the disease in the least time possible and not to increase the contrast of colour between the healthy skin and the patched vitiligo.To obtain this result biomedical engineers supported by dermatologists researchers they have planned and built an electronic generator, protected by an international patent, with a very high percentage of UVB rays able to focus the light bundle exclusively on the vitiligo spots while using a particular optic fibre.The emitted UVB rays are the most effective ones in the therapy of the vitiligo because they stimulate in an optimal way the melanocytes and are active on the immune system of the skin. The bibliography in our web site lists the principal international scientific works documenting the effectiveness and lack of noteworthy negative side effects of the therapeutic UVB rays on the human skin for the dosages relating to the BIOSKIN EVOLUTION® therapy.Otherwise from all therapeutic approaches which use ultraviolet radiation on full cutaneous surfaces, the BIOSKIN EVOLUTION® therapy, because it only conveys microdoses of energy on the affected cutaneous zones, does not provoke the photo ageing of the skin. The BIOSKIN EVOLUTION® therapy is adapted to the requirements of every individual patient, as well with regards to some characteristics of emission of the ray as for the duration of each therapeutic treatment. We are in any event able of providing a general model of the BIOSKIN EVOLUTION® therapy. Every session, carried out exclusively by a doctor, it consists of an irradiation of the UVB rays on the spots concerned only, excluding any healthy part. The ray, conveyed by optical fibre is applied for a maximum duration time of 10 seconds on every square centimetre of the spot. Thanks to the use of a diaphragm placed on the terminal of the optical fibre and which is modified according to the characters of the interested area, the doctor can modify the diameter of the area to be treated for any particular case. Different to the other therapies based on the use of the UVB, this one doesn't provoke any pain, burn or other discomfort, neither during the treatment nor in the following days. The therapy must be repeated once per month, effecting altogether 1-3 sessions in the same day in accordance with the therapeutic protocol determined by the dermatologist for each individual patient. The therapy has never highlighted any negative side effects. The treatment has a variable general duration in accordance with the extension of the affected zones and the reaction of the subject. There are conditions of relatively constant reaction for each patient. The face, the groin, the armpits, the genitals, the neck, the breast and the thighs are the areas which repigment first, while the terminal zones close to the fingernails of the hands and the feet require in general, a superior lapse of time. Usually after 8-10 sessions it is possible to have an idea of the recovery speed of each spot of vitiligo for each individual patient. From: www.vitiligo.it

What is Vitiligo....??

Vitiligo (pronounced /vɪtəˈlaɪgoʊ/) or leukoderma is a chronic skin disorder that causes loss of pigment, resulting in irregular pale patches of skin. It occurs when the melanocytes, cells responsible for skin pigmentation, die or are unable to function. The precise cause of vitiligo is complex and not fully understood. There is some evidence suggesting it is caused by a combination of auto-immune, genetic, and environmental factors. The population incidence worldwide is considered to be between 1% and 2%.[1] According to Diseases Database: "A disorder consisting of areas of macular depigmentation, commonly on extensor aspects of extremities, on the face or neck, and in skin folds. Age of onset is often in young adulthood and the condition tends to progress gradually with lesions enlarging and extending until a quiescent state is reached."

I am a Vitiligo Victim

I have Vitiligo, What happened to my skin?? I HAVE VITILIGO........... I never knew that word 5 years ago! Like most people in this world, I would wake up and get dressed and NEVER think of what I was going to wear and whether it would show my skin or not. NO ONE thinks about showing a little skin, especially if it is hot outside! That is why they sell shorts and short sleeve shirts! BUT.....If you have Vitiligo....your wardrobe changes...unfortunately. Here's my story: I was blessed by my parents to have been raised in the 50's, 60's and 70's with a stable and adventurist childhood. We were very active in everything. Sports, family, church, piano lessons, swimming and stability. I was always thin and , once again blessed with good looks( so I've been told!)I went on to be a Mother, flight attendant, model, Real Estate Investor and Director of a Corporate Division. All the while, I have always been so personable, loving people and being around people. I attended party's, balls, theater, everything I could and wanted to! I traveled and loved meeting people everywhere. WHY am I boring you with all this????? BECAUSE .....Vitiligo took all that fun and confidence away from me!!!!! I can not wear what I want to wear anymore, I can not just attend functions during a hot summer afternoon, because I will faint from heat exhaustion by wearing long sleeves and having to cover myself up!(I know.....you're saying....how vain!!!, but it's not to ME!! This is a socially devastatingly disease and I have met people who haven't left their houses for years because of it! It effects you emotionally and you all of a sudden feel like a freak!Vitiligo (vit-ih-LI-go) is a condition in which your skin loses melanin, the pigment that determines the color of your skin, hair and eyes. Vitiligo occurs when the cells that produce melanin die or no longer form melanin causing slowly enlarging white patches of irregular shapes to appear on your skin.An estimated 1 to 2 million Americans have vitiligo. It affects both sexes and all races, but is often more noticeable and more disfiguring in people with darker skin. Vitiligo usually starts as small areas of pigment loss that spread and become larger with time. These changes in your skin can result in stress and worries about your appearance.There is no cure for vitiligo. The goal of treatment is to stop or slow the progression of pigment loss. And then attempt to return some color to your skin.I live in Florida...ALOT of sun here...and I tend to get tan(only where there is pigment left) without even trying. It looks terrible! I try to stay out of the sun, but it's difficult. ALSO, some cures actually suggest natural sunlight daily.OK, so that's a brief description of my 5 years of having this disease. NOW I want to try and help other "victims" with all my research and treatments. I won't stop my research ever on this awful condition!! Mark my words! I am not going to stop trying...I am not a physician, nor do I have any medical training at all. I only do research on what interests me or what bothers me or someone I care about. With that said, do not take my blog as a cure, only as someone who cares and wants to share my research. YOU decide what is good for you, as we go along. This blog will be long and not be complete until we find a cure, so sit back and just check in once in awhile. I read Lee Thomas' book, "Turning White". I met him at the National Vitiligo foundation conference in Cincinnati, Ohio. He is a newscaster from Michigan with vitiligo and has it alot on his face. He can not go on camera as he is without makeup, because no one will pay attention to what he is saying. THEY WILL JUST LOOK AT HIS VITILIGO ON HIS FACE! It's a great book, I really enjoyed it and enjoyed meeting him. He mentions in his book that he "was a prisoner of this disease, trapped. The vitiligo had" held him hostage and he knew who he was on the inside but my exterior terrifies me". He has since found his own way to deal with it and go on. I joined the National Vitiligo Foundation several years ago and did attend one conference so far. It was a good feeling to go there and feel normal amongst those who understood. They also held several informational sessions , mostly by doctors, for educational purposes and to update us on current research. They also have updates on their web site if you join. The web site is nvf.org and it is a good tool in keeping up to date on current treatments and research. I started my research by Internet, of course. I am on the web all the time and always researching. My 1st dermatologist recommended Protopic cream and UVB light treatments. I went to the office for several treatments, twice a week. It was a good commute and I finally asked my medical assistant if I would qualify for a UVB light in my own home through my insurance. She administered the claim, and low and behold... I was granted my own UVB light! It cost me $500.00 out of my pocket, but it was a $3500.00 piece of equipment. It was delivered and I began my sessions......with all the hope in the world!! Wow, I finally thought I had my cure to this terrible disease!!! Well... I'm sure that the UVB light works and I have heard success stories about it, but at that time in my life and my stage of Vitiligo, I only had it on my feet and hands. I was told to cover up all other areas of my body, and only expose my hands and feet to the light. It's really hard to get this light to your hands and feet. I believe the hand held light would be a better solution. I still have this light and it would be a wonderful thing to share with someone who does not have health insurance! I would do that in a minute just to help another victim of this disease!!!! The light is one of a very few solutions that doctors can give right now, along with a few different topical cremes. I have always used Protopic, it is an immune suppressor, and really helps with the itchy skin. I found when I was losing my pigment, that my skin really itched bad! The more I scratched it, the worse it became and then the immune system would send a "signal" to that overly scratched area and it would precede to do it's job of curing the "itch" but it would ALSO continue to destroy my pigment. It was like it did not know when to stop it's so called "protective mode"!! I find now, that I will never scratch myself to any extent, out of fear for my pigment to be lost!!! I went to a few dermatologists during my time for this condition and had found out that there are different suggestions of treatment with different doctors. BUT..... they are all still limited to the ways to try to bring back pigment. There is still no real understanding of this disease and how to "cure" it. So it is trial and error on everyone individual. My 1st doctor put me in the UVB light treatments twice a week with Protopic applied every day, twice a day. The office was about an hour away from my house, so after about 3 months of commuting there, I asked if I could get the UVB light for my home. They approached the insurance company and to my surprise they approved a $3500.00 machine, with me having to pay a $500.00 deductible. I continued to call the office for advice with the machine on occasion, but as I mentioned before, I only had the vitiligo on my feet and hands at the time, so I was covering up the rest of my body and only trying to expose my feet and hands to the light. ( Little did I know, my immune system had more plans for my body, and continued to attack the rest of my skin! There are a few types of vitiligo, some people have only a few spots with no more spreading, some people had it only in different areas of the body and then there are people like me, who have it symmetrically, both arms, both legs, both feet and hands are attacked exactly alike on both sides of the body. I had done and still do, alot of Internet research. I have read years of articles on vitiligo and they all seem to say basically the same thing...UVB light and topical treatments. There are MANY sites out there offering various pills, and I have not tried any of them EXCEPT one that my dermatologist said another patient of hers had been on and she saw significant difference from supposedly the pills....??? So with that said, I bought those pills.. Vitilax.. and have been on them for over 4 months now. NOW, they claim that with advanced vitiligo, the kind like I have, you MUST take the herbs ( 12 a day) for at least 4 months. So I am in the "lets see something happen now stage"! With that said, there is no one agreed upon way to treat vitiligo. Treatment can be specific to each individual case, but there is no cure yet, so the results usually vary. Either way , several treatments a week are necessary to obtain results. the best results are seen on the face, and the hands and feet are the hardest to re pigment. The last resort is to completely depigment, and this should be a procedure done after talking to a mental health professional first, since it is permanant at this point. Vitiligo is known to be associated with autoimmune diseases, especially thyroid disease. Be sure to have your thyroid checked on a regular basis if you have vitilgo. You should do your own research and become familiar with all of the autoimmune diseases. This is not only a cosmetic disease, but also a very traumatic, emotional issue. With white spots all over your body , or worse yet on your face, you become someone who people stare at and look at as abnormal. You tend to cover up and shy away from the world and the social life you used to know. IT IS DEVASTATING! I have meet several people with Vitiligo, and some men I have met, do not seem to be as bothered with the disease. They are aware of it , but do not educate themselves, even as is the case of one of them, he did not even know how to pronounce the word " vitiligo". BUT , this is not the norm, since I have meet many men at my conference at the National Vitiligo Foundation that traveled far to be there due to their concern about their looks. My heart cries out for the darker skinned people, since it is very obvious, the darker the skin. I tend to have french blood in me and my Mother was a darker skinned french woman, so my skin looks tan all the time. With that said, my vitiligo shows up more! I have always THOUGHT that Michael Jackson has Vitiligo, but he refused to tell the public about his disease. He kept it quiet somehow, and therefore no one still knows whether he had the disease or not. He could have been the best spokesperson we ever could have had! He could have told the world about the terrible, social, emotional disease! If he did or does have it, he has done all of us that are suffers a big dis-service! I understand his embarrassment and fear of rejection, but he was our one hope, due to his fame! It takes a big person, not a big star to help others. The "star" part only gets more recognition. WE NEED a good Spokesperson for this disease, NO ONE knows about it! I have had doctors and nurses look at me with a quizzically look, not knowing what I was talking about when I said I have Vitiligo! My sister who has been a nurse as far back as I can remember, had never heard of it! If this disease does not get enough exposure, then we will continue to be in our own little world, without a lot of help. The word NEEDS to get out! Thanks to the National Vitiligo Foundation, they are really trying to help! They are conducting a lot of research, and starting support groups nationwide. I have continued my research and am now on a Chinese herb called Vitilax from the Merry Clinic. I heard about these herbs from my dermatologist who was starting to treat another patient. We all have to go thru an initial consultation with the dermatologist before we can get treatment. The insurance company is alerted and the wait for approval can take up to 6 weeks to get it back. I went thru the waiting period , as did this other woman, BUT she had started taking the herbs in between. ( the herbs take up to 3 months to show signs of improvement). My dermatologist told me that when she came back for treatment after approval from her insurance that she had shown signs of visible improvement within that waiting period. Well.......that's all I needed to be convinced that this was something I needed to try!!! So, I bought my first 3 bottles ( not real inexpensive) and since they say on the web site, if you have vitiligo all over your body like I do, it would take up to 4 months to see any improvements! I take 12 CAPSULES A DAY!!!! 6 in the morning and 6 at night! Well needless to say, those first 3 bottles did not last very long!!!! I am still on them, and now it's been 4 months...so I'm still waiting and watching! Below is a photo of my skin and the effects of the XTRAC Excimer Laser :: We'll begin to talk about that treatment next. If you suffer from vitiligo, you know the frustrations - white spots that cause uneven skin color and, until now, no effect treatment.Finally you may be able to enjoy effective relief from the unsightly symptoms of vitiligo. With the revolutionary XTRAC® excimer laser system, you can feel good about yourself again. With treatment sessions which can last just a few minutes, the XTRAC can change your life.XTRAC Laser Cleared For Vitiligo Treatment .The XTRAC is the first excimer laser system FDA-market cleared to treat vitiligo. The XTRAC laser utilizes UVB light to potentially stimulate melanocytes that may be present deep in the skin. UVB light is known to stimulate melanocytes. Clinical studies have indicated that the XTRAC laser tends to be most successful treating vitiligo on the face and neck, and least successful in the hands and feet. I am hoping this is not completely true, since I have lost all color on my hands and feet! I have been told this treatment is truly VERY successful with vitiligo on the face. That is a WONDERFUL THING! I do not have it on my face (thank GOD) ...